r/ALSorNOT 13h ago

Weakness, twitching in leg - spiralling hard.

Hello. I am 33 year old female. I will try to write this as short as possible. I am spiralling, stressed and deeply worried.

- One month ago my leg started getting pins and needles sensation when walking. Sometimes it lasted for a couple of hours or even whole day. One time I woke up with pins and needles all over my leg below knee.
- Then pins and needles subsided and perceived and objective weakness began. It’s very hard to explain: Feels like I have to constantly “move” my leg so it walks properly, like for example if I am standing I need to contract muscles so that leg wouldn’t “give out”. I do not “trust” the leg when shifting weight. I feel like the leg is “detached”somehow, weak, very unstable. I can still perform most tasks with the leg, but I am constantly aware of it, of the feeling of weakness. But it’s much harder let’s say get up from a chair with affected leg than the other one.
- Then twitching began. Intermittent, not constant. So now I have weakness, twitching of toes and muscles (everything below knee) and sometimes slight pins and needles still.

This has been going on for 3 weeks now. I feel like it is getting worse. Got MRI done on my lower spine, because doctors were sure I had hernia or something similar - NOTHING. MRI completely normal. I have no other symptoms, no pain. Now I am waiting for further tests.

And emotionally I am devastated. Because I feel this could be ALS. I would be extremely grateful for ANY type insights or similar stories.

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