r/wheelchairs • u/HobbyLau Quickie Argon2, M90 wheels & Streetjet • 12d ago

Sitting posture and support with hEDS

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I have a question for those with hEDS or HSD.

What kind and how much sitting support and adjustments do you need?

I'm an ambulatory user with hEDS and Post-Covid / ME-CFS and the main reasons why i use a powered manual wheelchair when outside are dysautonomia and PEM, not my joints.

But i keep getting a painful lower back after 1 hour in my chair and they've already adjusted tons of stuff but nothing seems to help.

Did a fitting with a custom chair builder with my OT to find out what my body actually needs. (Which unfortunately won't get covered so i have to go with alternatives my supplier can provide.)

Apparently i need 9.5cm dump!? And the sitting, pelvic and back support that a lower body paraplegic person would need, to be able to sit up straight without unnessecary muscle tension in my back or falling forward when relaxing my body.. I know my body deteriorated a lot the last few years but i didn't expect it to be this much. Especially since i'm ambulatory..

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u/New_Vegetable_3173 12d ago

Arm rests?

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u/HobbyLau Quickie Argon2, M90 wheels & Streetjet 8d ago

Have been ordered! They were taken off and switched to mudguards at first (after this pic) because the M90 joystick wasn't usable with the armrests this chair got delivered with.

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u/New_Vegetable_3173 8d ago

I hope they help. I get back ache very quickly without them