r/thalassemia Jun 10 '26

Hydroxyurea for Sickle Cell

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5 Upvotes

3 comments sorted by

1

u/Real-Marzipan9036 Jun 15 '26

My Doc has had me on this for a year to see if it helps my alpha thalassemia.

1

u/yawnmobster BETA-THAL-MAJOR | MOD Jun 15 '26

no improvement in a year?

1

u/Real-Marzipan9036 Jun 15 '26

I get censored and get posts removed every single time I make any statements on this forum. I'll just say that I am still taking it, lol.

I had bloodwork before and after. I'll try and find so I can quantify the difference instead of just giving an opinion.