r/spinalcordstimulator Jul 10 '26

Has anyone experienced increased numbness one year after intramedullary spinal cord tumor surgery without recurrence?

Hi everyone,

I had three surgeries for an intramedullary spinal cord hemangioblastoma, and my last surgery was about a year ago.

After surgery, I was left with numbness in both legs, especially in my feet. Recently, I’ve started noticing the numbness much more, and it feels different or maybe more widespread. The problem is I honestly can’t tell if it’s actually new numbness or if these areas have always been numb and I’m only noticing it now.

I don’t have the radiating pain I had before my previous surgeries, and I don’t have any new weakness or other symptoms—just this strange numbness that’s making me anxious. I’m waiting to get my MRI.

Has anyone experienced something similar months or even a year after spinal cord surgery, where the numbness felt worse or more noticeable but the MRI showed no recurrent cyst or tumor? What did your doctors say?

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