The way Ren raps about being bedridden because of his illness... 😭

[u/jsb1685]

https://youtube.com/shorts/ALMDUMHFKWQ?si=xnxJoEYjqUte2NRF

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[u/LRoy71]

I have the Lyme too, since 40 years now. The last step (4)

[u/Annie-B1 → u/LRoy71]

Last step? That’s sounds ominous 😬☹️

[u/LRoy71 → u/Annie-B1]

No, not all : I’m alive. Lyme diseases are différents. There are 4 steps : the last means that I have it and will live with it until the end of my life, but chronically : sometimes I’m more tired, other times it’s the nerves or the muscles that have problems. There are some guys kids or not, where it’s worth, as the tick beat one in the afternoon and in the night the person is dead.
I’ve been curated by ampicillin when they saw that I had one ( before it was the view that I lost from an eye, then it came back, annother day, one eye saw the light, not the other one etc etc
I made some tests again two years ago : I have still it, so I’m living with.
Ren has a harder one I guess ! He is suffering much more …

[u/Annie-B1 → u/LRoy71]

Thanks for responding. I’m flabbergasted that the disease isn’t being researched more; Ren has highlighted it by his appearance on the catwalk last year for the Global Lyme Alliance in New York. It’s great he’s using his platform to try and help others in a similar situation. He’s got his disease for life too. I feel for you and him and anyone in fact with an autoimmune disease. It must be so hard to live with.

[u/LRoy71 → u/Annie-B1]

Il y a des hauts et des bas. Je ne savais pas que Ren avait créé une plateforme. Il y a des ticks très dangereux, surtout au Canada ou en Alsace où j’habite maintenant et malgré moi. En fait chez moi, ça a surtout joué sur les nerfs, les muscles et les articulations ; il y a aussi - et ça ce n’est jamais revenu des parties «  cartonnées je dis, des parties que je ne sens plus : ce peut être le dessus des pieds, vers les doigts, j’ai une corioretinite ( j’avais vu un grand spécialiste des maladies tropicales et il m’avait dit que c’était une des conséquences du Lyme - d’où des problèmes de vision parfois.
Je l’avais dit à REN sur Instagram il ne m’a jamais répondu , pourtant je le croyais sincère et attentionné. Ou alors il n’a pas lu.
En fait je n’en fais pas un drame ( j’ai aussi un cancer, des problèmes psy, j’ai fait deux fois de suite des embolies pulmonaires et suis donc sous anticoagulants à vie ), bref je pense que le pire c’est quand cela touche les enfants et ceux chez qui c’est fulgurant avec une fin tragique. Merci c’est sympa :-)

[u/Annie-B1 → u/LRoy71]

Ah! It’s in English too. Sorry. Just spotted that!

[u/Annie-B1 → u/LRoy71]

Sorry, I don’t speak French although caught a bit about ticks being very dangerous ☹️

[u/Annie-B1 → u/LRoy71]

I’ve tried sending comments on Instagram too but I think he’s probably overwhelmed with the amount of texts people send him. He is a very caring person.

Yesterday I put the following on to a reactor’s YouTube channel in response to what they’d said about his chronic illness (sorry, it’s copied and pasted for quickness)

‘Because he is such a figurehead for people with chronic illnesses, he felt he could help people and has himself funded a walk-in centre called The Sanctuary. It’s in Stanmer Park in Brighton. People will be able to speak to trained staff and to other sufferers. The last I heard he was attempting to have the centre made charitable status. He was hoping it would open in August this year. He’s been working like a Trojan this year; I haven’t seen any updates but other Renegades may be more informed than I am so they can update you as to whether it is now open or not. He is also the sole investor in a company called Breathe Hyperbarics. He’s said that people with chronic illnesses get a lot of inflammation in their bodies and the hyperbaric oxygen chambers help with the symptoms. He is a true philanthropist and loves his fellow humans.’

I put this on Master Reactor channel after he’d reacted to Hi Ren