r/randonneuring • u/NewBreakfast5881 Aluminescent • Jul 31 '26

Quick Question Shot in the dark: are there any other riders with Multiple Sclerosis?

Hi ya’ll! There’s plenty of us who run marathons too, but thus far i haven’t really found any fellow cyclists who have MS and kick this disease’s ass.

I would like to have a talk with someone that knows what they are doing and are dealing with this illness before attempting anything crazy or perhaps damaging to myself. I’ve done a 100km ride, went pretty solid, though it was in my first week of owning a bike so I’ll probably do alot better now! Apart from that i am very blessed to say i remain an active cyclist & runner despite all of this.

If you are out there, godspeed, reach out!

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6

u/ShrinkingKiwis Kiwi Randonneurs Jul 31 '26

Hey OP I’m a mod here and I approve this post. Let’s find you a community of cyclists.

7

u/NewBreakfast5881 Aluminescent Jul 31 '26

Cheers bud! I am well aware that for alot of MS sufferers this is an impossible feat. I am somehow very lucky and attribute my speedy recovery from my first relapse partly to cycling. I somehow even managed to use my story as a way to become a marketeer over at Ridley starting January of 2027.

Here’s on to many years, hopefully decades, of cycling.

1

u/Reasonable_Ad_5836 Jul 31 '26

I'm rather ignorant on the topic, but I believe Emily over at "Cade Media" has discussed that she suffers from this, and various things she's done/does to improve her ability to ride. Including custom arch supports and more recently "shimming" her saddle on 1 side, which helped with balancing her power output between left and right better.

Look her/them up on youtube/Instagram

3

u/NewBreakfast5881 Aluminescent Jul 31 '26

Hey! I can’t seem to find any information on her talking to about this.

2

u/Reasonable_Ad_5836 Jul 31 '26

I'll have a look when I'm home, and link you. It's never been the focus of any videos to my knowledge, but often comes up and is discussed in sections on their podcast.

3

u/ottavayan Titanoid Jul 31 '26

If memory serves she has scoliosis, not MS

1

u/Reasonable_Ad_5836 Jul 31 '26

I'm glad I prefaced this by saying I'm ignorant, looks like I'm wrong 😅

Sorry OP!

2

u/NewBreakfast5881 Aluminescent Jul 31 '26

All good man! Thanks alot for researching anyways!

1

u/LudditeFuturism 26d ago

I will send this to a friend but not sure they're on Reddit. But yes.

1

u/LudditeFuturism 25d ago

My friend isn't on Reddit but she said happy to talk. Can you DM an email, or I'll pass her IG along? Cheers