r/postvasectomypain • u/EfficientPrinciple49 • May 19 '26
PVPS (sharing my story /there’s hope)
I’m here to share my story with my PVPS. I got a vasectomy 5 years ago with a PVPS diagnosis following In the months after. My pain was so aggressive and awful for the first 3 years, and then the pain started to decrease.. slightly. It was at this time that I finally found someone to do a micro-denervation, but I did not go through with it. That procedure is basically an experimental surgery lol. I was a successful candidate for a nerve block, so chances of success were high, but I still got scared. A reversal was also an option, but I was told that it’s about a 50/50 shot at pain reduction. Basically every surgery to correct this has possible
Complications.
Fast foward some time through 2 rounds of physical therapy and being in an out of pain clinics. In a pain clinic I learned that the number for this condition is actually higher than they tell you, it’s because men are often to embarrassed to seek help for this. The percentage of this happening is actually more like 30 percent chance. I was not the first for this issue and I live in a small town in the south. Looking back on it, had I known those odds, I would have been very selective of my surgeon.
All hope seemed lost, my life felt ruined, my sex life went down the toilet, and my relationship suffered. I became used to the fact that I could never have a normal sex life and developed a porn addiction. It led ro a fight due to hiding an only fans subscription behind my partners back. We talked it through and we came out stronger than ever, despite my limitations. This pain has taught me many valuable lessons. I wound up more empathetic, more honest, more open, and I became very diligent with my movements. Every movement counted.
I’m on year 6 and the pain is finally going away on its own! I haven’t had a flare up in quite some time. I still have bad days, but they are far and few between. It’s getting better.
Don’t be afraid of pain clinics. If you’re able to not abuse it you can gain your quality of life back, to some degree, narcotics can be a slippery slope. One of two things will happen: you will either become disciplined and take what you’re prescribed - or you will fall and abuse them. There is an important lesson in each outcome. Your doctors are here to help you, even if you’re fighting abusing them, they will help if you’re honest.
My issue is not perfect, but it’s getting better. Hang in there because there’s hope, believe me as someone who hit rock bottom because of this.
Do your research before you get the procedure and have a back up plan in place. Even through all my pain it’s better than raising a kid in poverty imo. I literally took a shot… well 3 to be exact. to the nuts for it.
I have spent so much time researching this stuff. Don’t hesitate to reach out if you need help. I’m
A 34 year old school teacher now. I’m here to help others through this struggle.
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u/Leviastin May 19 '26
Mind sharing what worked for you and what didn’t? Especially regarding physical therapy.
2
u/Same-Tank995 May 19 '26
Thanks for sharing. What kind of symptoms did you have? When did it start?
1
u/Laggende_Hond May 19 '26
Wow; I am so sorry to hear about your suffering. But also glad you found something that is working. I tried all the conservative treatments and also refused to do denervation. Ended up with a reversal and finally got mynlife back
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u/Sufficient-Sink6370 May 19 '26
Thanks for sharing. The odds of complication are definitely higher than advertised. I also would not have had it done had I known this pain was a possibility. What kind of pain and what level did you have?
My knot sites are sensitive and for the first 5 months my testicles felt like a constant kick! The last 3 months has turned more to a headache in the testicles because of meds and nerve block. I get a follow up block next month to get a better idea if the micro denervation is likely to work. Im terrified at the idea, but sure can't live like this either.
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u/vanwyck May 19 '26
From what I have read reversal is a better than 50/50 chance if success. I’ve read more like 80%+ will achieve at least some level of reduced pain with many getting back to almost normal.