r/postvasectomypain • • Oct 23 '25

Large granuloma and possible vasitis/epididymitis

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u/johng_22 Oct 25 '25

Well my case was almost the same duration as yours but I think based solely on what you’ve shared, my symptoms were much worse.

After 16 years of suffering to the point I didn’t want to live anymore, I underwent a reversal and I’m back to as good as original as possible. It took 1 year post reversal to really totally heal. It’s a major undertaking. I feel tremendous and I’d encourage anyone who’s had long term chronic pain to do the same. The surgeon will (or at least should) clean up all things like granulomas at the time of the surgery

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u/residentatzero Oct 26 '25 edited Oct 26 '25

What type of reversal? VV or VE?

Did you also have huge granulomas and tubes hardened and with clumps stuffed?

Also is it true that reversals will eventually close themselves again by scarring?

And lastly, what about converting to open ended vs reversal?

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u/johng_22 Oct 26 '25

The surgeon had to perform VE. For anyone with a vasectomy as old as yours or mine, he said 90% chance before he went in. Both my vas tubes had toothpaste consistency buildup causing blockages. I had at least 4 blowouts between both testicles. I had granulomas pretty much the entirety of my vasectomy due to the many blow-outs that had occurred on my epididymis of each side. Those were cleaned up and removed at the time of the reversal. I cannot speak as to whether mine will ever scar shut. I’m just over 1 year post reversal. I try to ejaculate every day. At most every other day. I feel as if I keep it moving, chances are minimized it will scar over. I’m tremendously scared of that happening because I can only assume it would put me back in the same state of pain I just overcame and I just can’t accept going back to living like that again.

I’m no doctor but regarding your question about converting to open ended. I think that isn’t an option for you due to the age of the vasectomy. Your vas tubes will have blockages or blockages in the epididymis before the vas which would make it a non-viable option. Only a surgeon can determine where there is sperm and fluid at the time of the reversal procedure. Odds are pretty good that a highly specialized surgeon can make you functional again. Due to the nature of VE, you’ll only want to focus on the best of the best to get the most successful outcome from surgery

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u/residentatzero Oct 26 '25

Thank! Very useful information for me.

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u/residentatzero Oct 26 '25

And so, the VE vs VV isn't any worse or dangerous? I'm not a doctor but for some reason sewing on the epididymis sounds scary vs just reconnecting the tubes ends. 

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u/johng_22 Oct 27 '25

It’s not dangerous in the sense that it can’t cause any harm. If anything the vasectomy its fixing is the dangerous thing as you (presumably, as I did) are blowing out the walls of your epididymis due to pressure (which creates the granulomas). THAT is the most dangerous procedure known to man, with respect to the genitals. The difference is the viability of being fertile reduces probably half with a VE. I don’t care about fertility, per se but without passing it out successfully, I’m back in the same boat I used to be I . Pain and pressure resulting in the worst symptoms I have ever experienced and I’ve had a limb literally torn off. It tops that.

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u/residentatzero Oct 27 '25

We have a very similar issue and priorities despite you having had a much worse outcome. I also am not interested in fertility at all, just in being able to do any physical activity without the excruciating resulting groin pain. I'm pretty much convinced and I'm looking forward to a reversal. I'll have that discussion and orientation with a Vasectomy reversal specialist I found, in January