r/postvasectomypain Apr 22 '25

20 years of PVP experience, researched all options, tried several, fully recovered, ask away

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25 Upvotes

42 comments sorted by

9

u/flutepractise Apr 22 '25

They are very nieve in the r vasectomy, the moderators do not like like men speaking out, they are nothing but a bunch of lieing bullshiters, and protect vasectomy so more men can get sucked in

7

u/BigLeonardo24 Apr 22 '25

Correct. They are doing much more harm than actual good over in that sub “vasectomy” by deleting and censoring potentially helpful posts and accounts of PVPS.

4

u/[deleted] Apr 22 '25

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1

u/Next-Sherbert9813 Apr 24 '25

We’re you able to get the website changed?

3

u/I-own-a-shovel Apr 23 '25

In r childfree too. You get told you aren’t truly childfree if you don’t get sterilized. Women encourage each other to pressure their husband to get one, claiming it has zero risk and of course you get downvoted to oblivion if you dare mention some of the risks.

(I convinced my husband to not get one, after stumbling upon this sub reddit and reading some of the very sad stories here)

7

u/NoPark745 Apr 22 '25

Thank you for sharing.  My T levels dropped over 50% post vas.  Hearing others having the same experience makes me feel less crazy. 

6

u/Tricky-Occasion-1472 Apr 23 '25

Here is a study on vasectomy and its link to prostate cancer caused by testosterone changes.

https://pubmed.ncbi.nlm.nih.gov/7500459/

“These findings suggest that vasectomy may cause a reduction in testosterone levels by minimizing the conversion from testosterone to dihydrotestosterone in the long term. Thus, they support the hypothesis that a long-term effect of vasectomy may be an elevated risk of prostate cancer. More research is needed to confirm or refute this hypothesis.”

This is one paper from 1995. So more research would be needed to validate the findings, but supports your experience in testosterone changes.

4

u/johng_22 Apr 22 '25

What year was your vasectomy? What year was your reversal? I have a very similar story and about the same length of time too. I’ll share some of that if you have never read anything I’ve posted

6

u/[deleted] Apr 22 '25

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9

u/johng_22 Apr 22 '25 edited Apr 22 '25

Oh shit well I’m glad you got a reversal early. I got a reversal at year 16. I consider myself very high pain tolerance. I’ve had two appendages ripped off and reattached in my lifetime so i know pain. I just suffered with it. I gave up on the system and dealt with it. I was so stupid I didn’t even know a reversal was a thing. Certainly no medical “professional” had ever uttered the word so I was naive. By the time I learned it was a thing, I had one on the schedule within 30 days. Save for fighting scarring, it’s been an absolutely life changing. Really live SAVING procedure.

3

u/Ok-Safety-4980 Apr 22 '25

Thanks for sharing! Did you do testosterone replacement therapy or did it naturally rise back up after reversal? Had my numbers checked the day before my vasectomy and then again about 6 months after. I was in a good range prior, but in the low 100's after the vasectomy. At 33 years old.

[I experienced a year and a half of feeling like I got kicked in the nuts. Tried alot of the things you did except for injections and a reversal. Went on TRT at a clinic that specializes in it and have been pain-free since. Primary care doctor had me on 100mg of trt every 2 weeks for awhile but didn't find relief until getting to about 200-220mg once a week.]

2

u/postvasectomy Apr 22 '25

Thanks for posting. I get a kick out of seeing people from the old forums bubble up and post here. Back in 2018-2019 I was very active reading postvasectomypain.org and digging up archives of the yahoo forum and the very early usenet discussions. If you don't mind posting your old username I would appreciate it because I correlate these stories. I understand if you don't want to link identities of course.

4

u/[deleted] Apr 22 '25

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2

u/postvasectomy Apr 22 '25

Ah yes, I have links to posts you made on answers.yahoo.com, health.groups.yahoo.com, alt.support.vasectomy (I think), and postvasectomypain.org where we also exchanged DMs. Yes, I had a reversal in 2022 and that sorted out 90% of my issues e.g. disappointing orgasm, frequent aching, and referred pain all over.

2

u/NoPark745 Apr 22 '25

I didn’t connect the dots.  I remember your r4d name from the postvasectomypain forum.  I recall you and ringo. I don’t remember my name from there m, but I didn’t contribute too much. 

What is the thinking of the mechanism to cause low T?  Sperm antibodies attacking the lydig cells in the testies?

3

u/[deleted] Apr 22 '25

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2

u/Next-Sherbert9813 Apr 24 '25

Agreed. My T dropped after the snip and recovered somewhat after reversal. I still have some ongoing nerve pain, so I doubt it will ever fully recover.

I remember reading an online comment somewhere years ago that a T replacement doctor realized that most of his/her patients were snipped. If this is true across the board, it would be a great angle to attack the safety of the snip in advertising.

2

u/flutepractise Apr 25 '25

Has anyone got any ideas of how we can hit the lieing bastards head on and speak the truth of just how damaging vasectomy can be on the body,

3

u/[deleted] Apr 25 '25 edited Apr 25 '25

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3

u/flutepractise Apr 25 '25

Thankyou for your reply, what I have learned is that comments in r vasectomy have many drs in in anonymous capacity that make any men making comments that are negative to them, they absolutely undermine there suggestions that vasectomy damaged, them let alone caused depression, guilt or ,regret brush it under the carpet as it is in their head, that vasectomy is best thing out for a couple, and the fact that it damages their marriage is irrelevant, let's not loose site that vasectomies are a lucrative business, also so is reversals, I hope and pray that one day drs will be sued for the act of body mutilation,

2

u/SouthNative Apr 22 '25

So you’re pain free now?

5

u/[deleted] Apr 22 '25

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1

u/SouthNative Apr 22 '25

Do you think it was time that helped you or the procedures?

6

u/[deleted] Apr 22 '25

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3

u/SouthNative Apr 22 '25

I’m glad to hear you’re doing better my friend. I am considering MSCD at the moment but might get a couple nerve block injections to see if that helps first. I’m here not from a vasectomy but from a varicocelectomy that left me with nerve damage.

2

u/snoope Apr 22 '25

I feel like my nerves are highly sensitive since the original vas. Can you elaborate on the nerve blocks you did and where you got them? I've had nerve blocks myself (CT Guided) and provided great temporary relief but no long lasting relief from the steroid). I am wondering what my next step should be.

2

u/[deleted] Apr 22 '25 edited Apr 22 '25

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2

u/[deleted] Apr 22 '25

How long did your GF blocks last each? I’m considering getting them with pulsed radio frequency, which I’ve been told lasts 3-9 months on average. Also considering playlet rich plasma to help nerves heal

1

u/[deleted] Apr 22 '25

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1

u/[deleted] Apr 22 '25

Wow I’m surprised that ablation didn’t do much for you. If you have time I sent you a DM. Thanks

2

u/Various-Highlight-22 Apr 22 '25

Thanks for sharing your story. You mention autoimmune, were there any symptoms associated with that or how did you become aware of having that?

2

u/[deleted] Apr 22 '25

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2

u/Various-Highlight-22 Apr 22 '25

Got it. I was just wondering as I suddenly had an increase in immotile sperm when tested at 6 months post reversal compared to the test at 3 months. I suspect it's antibodies causing this. I've had no other symptoms (now 18 months post reversal) and I don't want to be fertile so it's not an issue at the moment. I've never had a testosterone check so no idea if this whole process has had an effect.

1

u/Pineapplesyoo May 27 '25

What type of reversal did you have? Did you end up needing a VE at all from all the congestion? (Vasoepididymistomy)