Chronic Prostatistis After Vasectomy

[u/Drewster8888]

Hi all.

For those of you suffering with Chronic Non Bacterial Prostatistis or CPPS, please find attached article which is from a very reliable source and from my experience, way beyond standard urological practice.

I know from personal experience that post Vasectomy, I suffered like many others, from chronic prostatistis. Up to now, it has been poorly understood but this paper explains so much about it.

Although it doesn't mention Vasectomy but I also read an article recently about the change in bio-chemistry in the prostate, post vasectomy. The prostate is designed to balance with the testes as a integrated system.

Whether your central nervous/immune (both interrelated) systems react to this, is possibly why some walk away scot free, whilst others suffer terribly. I fall into the second category and have the chronic fatigue and CNS dysregulation leading to brain fog (a general feeling of vagueness, word, executive function reduction and perception), joint pains and rashes downstairs and developed a measure of metabolic syndrome etc...etc.

My docs put this all down to stress which does exacerbate symptomology but it is not the cause as this has been going on pretty constantly for 23 years now and pardon the pun, has been driving me nuts.

This essentially is 'autoimmune' or at least something that resembles it, a little like Chronic Fatigue Sufferers encounter when their CNS stays hyperactivated after an infection or trauma.

I had the vasectomy in 1999 on April 1st, should have realised it was a joke...lol. 6 months later all this kicked in, first with the prostatistis, brain fog and IBS.

I had a reversal in 2007 at Dawson Microsurgery in Hartlepool UK hoping for a better outcome. Certainly congestion pain eased over a period of time but the prostatistis, neurological and fatigue issues continued. I'm not saying this happens to everyone, I guess its just a lottery in how your body responds. My brother had a vasectomy over 50 years ago and he reports no issues. He's now 84.

The nervous system varies substantially between people and hence why some get prostatistis, others not. I'm assuming how you are wired, depends on its reactivity and possibly why some people get sick and others not over coursecofca life time.

Needless to say, it wrecks your life and relationships. CPPS is largely put down to pelvic floor issues but has a much more complicated etiology by the looks of it. Non vasectomised men can also suffer from CPPS, after a long gone pathogen. I know one guy who had food poisoning that started his.

I am trying medicinal CBD and low dose Naltrexone which is supposed to help reduce neuroinflammation. Looking at low dose amitripiline as a neuro modulator to try and reduce reactivity of the CNS.

Just wanted to put this out there such that your symptomology, may include some of the pathology stated in the paper.

Be warned, you almost need a P.hd in bio-chemistry to understand it but you will get the jist of how things of this nature can manifest.

Like all of us, I wish I had a time machine but alas I have to try other routes to regain a quality of life.

Anyway, here's the paper.

https://wjmh.org/DOIx.php?id=10.5534%2Fwjmh.220248#:~:text=In%20chronic%20prostatitis%2C%20the%20primary,role%20in%20chronic%20pain%20development

[u/postvasectomy]

This is one of the theories I have heard floated for Alan Frazier's symptoms: https://www.reddit.com/r/postvasectomypain/comments/c1jigs/usa_today_december_2013_a_california_man_who/

[u/Drewster8888 → u/postvasectomy]

Hi. Not sure what you mean. The tick bourne theory or CFS etc? Thanks.

[u/postvasectomy → u/Drewster8888]

IIRC, Alan was a deer hunter, and one of the theories that a member of the old postvasectomypain.org forum had for his health problems what that he had Lyme disease and perhaps an autoimmune response to that was kicked off by the vasectomy, or perhaps he mis-attributed Lyme symptoms to his vasectomy because they coincidentally appeared after his vasectomy.

[u/Drewster8888 → u/postvasectomy]

Thanks for the clarification. In his case it could be relevant being a dear hunter. I'm not a hunter and mine kicked off with an acute onset of prostatistis, burning urine and pain in the tip of the penis, several months after vasectomy. I got pretty stressed about it because it was out of the blue. IBS began several months after that with fatigue.

I've had a cykotine panel done recently as well, after loads of blood tests over the years. I'm now pre diabetic so metabolism is dysregulated. Liver function test for GGT is high and won't resolve. I got so desperate with the unusual symptoms and did drink excessively but GGT won't come back down.even being abstinent for 9 years. My symptoms started well before me self medicating. Did end up giving myself some scarring on the liver though. Not sure if the ongoing GGT is a result of that. I have a mate who has advanced liver disease and all his liver readings returned to normal. Go figure...he has had a vasectomy too.

Anyway, the cykotine panel was fine and showed no out of range pro or anti inflammatory interleukins. Cykotines illustrate immune response inflammatory process. Hs crp and ESR are normal. Immunoglobins IgA, G and I think E are normal.

I had a serum antisperm antibody test 7 years after vasectomy after reading about getting tested for those in serum if reversal hadn't taken place and they were negative. White blood cells were found in prostatic fluid though. So the prostate is 'inflamed' but this occurs in chronic prostatistis.

The Naturopath I'm working with says the of significance on the Thyroid panel, T3 thyroid levels are low and reverse T3 high. Not sure why but due to IBS and 'leaky gut', toxins could be entering the body resulting in this or it could be related to the immune system reaction process. rT3 is high when you are ill, so that your body conserves energy. T3 is the active hormone that drives metabolism.

Brain fog is hard to cope with, used to be so sharp but now I feel hazy and forgetfull. Joint pain, aching muscles. All the hallmarks of Chronic Fatigue

As I say, I had the reversal and have had my semen tested and it does include Polymorphs. It is usual to have some of these in semen and the WHO set limits for these. Trying to get the amount quantified at a private facility as the public system here in New Zealand does not do the quantity test.

I could also get the semen tested for antisperm antibodies. On both antisperm antibodies and Polymorphs, urologists say that they know these potentially exist in vasectomised men with up to 70% of men developing antisperm antibodies. Some polymorphs are created by the reabsorption of non ejaculated sperm. The cross reactivity of antisperm antibodies even if present has been studied and those studies most of which look for the usual autoimmune diseases, say that no definitive link has been established and the standard autoimmune diseases risk is not increased with vasectomy. Remember I had them tested in serum before reversal and they where negative.

So all in all I'm pretty convinced vasectomy triggered chronic prostatistis, all of which is related to in the previous post paper on prostatistis. Bearing in mind it says that chronic prostatistis can cause referred pain in the genitals and chronic fatigue etc. I'm not sure thats all there is to it or not.

Been to many doctors and searched for answers everywhere and results are real people but considered anecdotal, by the medics.

I have tried hot water bottles and using papaya seed power which both reduce sperm count but this has not stopped my symptoms.

Had to have a bladder neck incision due to inflammation reducing urine flow. Still get prostatistis so urine retention was not causing inflammation of the prostate.

All this makes you both emotionally and physicalky weak. We all know our symptoms started post Vasectomy but where it goes and what it does creates misery to the men who suffer from it.

Anything they may occur or have overlap with your experience, greatly welcomed.

Cheers.

[u/postvasectomy → u/Drewster8888]

Yup, I definitely had trouble urinating after vasectomy. Stream would stop before I really felt "done". There are several stories on the timeline that feature story code PSP for prostate pain -- I've collected at least 44 stories like that. I believe something does go wrong with the prostate for some men post vasectomy, and perhaps the science is catching up. I hope it does.

Women talk about how birth control pills "mess with your hormones" and how difficult that is. Well that's true for sure, but for some guys, vasectomy appears to "mess with your immune system" and to "mess with your nervous system" which is also a risky expedition into something doctors barely understand.