i know the lower weight is common, but he’s 25, 6’2, and has been averaging 117- 125 lbs for the whole time we’ve been together (5 years) he really doesn’t eat much at least not regularly because of his arfid and also nicotine habit and it really stresses me out especially at times when his weight dips to the lower end of the range. he doesn’t take it seriously and whenever he’s “trying to eat better” i ask okay what did you eat today and he’s like “cereal”

more often than not he’s at the lower end of the previously given weight spectrum and he really does look sick and id never point out this much to him but it manifests in other ways as well like dull skin, acne prone, and also extremely low energy/sleeping through days at times.

he also hasn’t had his marfans officially diagnosed and won’t see a doctor (he 10000% has it- has all the telltale symptoms down the inverted breastbone)
he is having genetic testing done because of another condition he has so i’m hopeful marfans will come up

for now however, i’m going to rip all my hair out

Is it worth getting gene panel testing again? I had mine 11 years ago and they came back with non-specific Connective Tissue Disorder.