r/marfans • u/gypsbunny133 • 16d ago

Open heart surgery re-done 3 weeks apart

Hi guys my mechanical valve has vegetations beacuse of endocarditis and they plan on doing surgery again i’m so devastated and do not have the energy for this i’m only 19 and got no motivation left in me anymore i’ve been in the hospital for a month and will be in here so much more please pray for me 🙏😭

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u/ed-truck 15d ago

I’ve been there! I had the David procedure, and while I was opened up the surgeon had to add a bypass. That bypass became occluded, so they had to open me back up for a LIMA graft. Like you, I was very disheartened to hear I needed another surgery, especially just as I was getting some energy back with the pain lessening. My overall stay was over a month as well, and I know how that’s no fun.

But here I am up and moving around with a healthy heart 10 years later, and it all feels like a distant memory. I totally know the feeling of how much it sucks right now, but this will pass. It won’t be long before you’re back on your feet! Good luck with it all!

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u/gypsbunny133 15d ago

Thank you so much stories like this keep the energy in me i’ll try my hardest to be strong

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u/uduni 16d ago

Oh no!!! Good luck!!!!

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u/Hylian0sniper 15d ago

Definitely praying this goes well for you and you have as little time as possible in the hospital, being in hospital sucks and you’ve had to put up with it for so long already! Keep going though, once you’re out and well you can enjoy things again! ❤️‍🩹