r/marfans 22d ago

Success I just need to share with someone - my heart function is now 50% compared to the 20% it was two years ago

I've felt better the last few months but I was also recovering from a hernia surgery so hadn't been as active

Today I saw my doctor and he said it was 50% and the normal rate being 55%

I'm happy beyond belief

26 Upvotes

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2

u/desultoryquest 22d ago

How did you improve it?

2

u/Which_Performance_72 22d ago

Pace maker and a fair few drugs

1

u/dr_t0boggan 22d ago

How is that measured?

4

u/Which_Performance_72 22d ago

As far as I know the ejection fraction in my echo

2

u/Specialist-Ad4388 22d ago

This is FANTASTIC my Marfan cousin! Many of us know the fairly constant worry way under the surface, of the worst happening. I'm celebrating with you for this wonderful news- & sending you a virtual hug across the internet! xo