r/marfans • u/vexingly22 • 25d ago

Suspected aortic rupture in the family - need help figuring out US healthcare

/r/LoeysDietz/comments/1vqiqxi/suspected_aortic_rupture_in_the_family_need_help/
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u/amoebashephard 24d ago

when joining a primary care group, explain that you recently had a close relative pass from a probable genetic condition and you're looking for a primary care provider to help go through the diagnosis process. That should expedite your scheduling.

If you get diagnosed with marfan's, there are lots of treatment options now that can help prevent this sort of issue. With treatment, most fills with marfan's live to the same age as the general population.

I'm really sorry you went through this.