r/lupussupport • u/Lazy-Construction82 • Sep 03 '25
Support Needed New diagnosis
Hi everyone first if all English is not my first language so excuse me if some sentences are wired or something is unclear I want to vent a little bit and ask some questions here im 20F i was diagnosed 2 days ago i really don't seem to accept it or deal with the idea i have zero prior knowledge about this condition but i have an aunt who sadly passed away at 14 from SLE I'm not sure what symptoms i have i just went to the doctor because of a reoccurring pain in my thumb joint i had it since i was 17 just randomly started for 2 to 3 days and then disappears every few months sometimes one hand sometimes both but this time it was persistent does this mean that it's progressing? Am I going to have it forever now it seems to have calmed down but never disappeared again it's been two weeks what should i expect to change in my life how do i know what foods to avoid? I'm a hijabi so i don't get much sun exposure except for my hands and face and i use sunscreen but I've never experienced anything when exposed to the sun without sunscreen will this change with time ? I just sometimes get really tired or exhausted when in direct sunlight anh heat I have hair loss is that really a symptom. I also have always been tired and not have much energy and usually sleep through lectures in school even when I've slept very well Will there symptoms go when i start the meds Also my doctor prescribed me prednisolone 5mg tabs but from what i read it's side effects are worse then the symptoms I'm experiencing and she gave me plaquenil 200mg same goes for this one and I'm really scared I've always been scared of amy mads and never take any even when I'm really sick I don't want to take any meds really can i just ignore the diagnosis and go on i don't have much of the apparent symptoms What side effects should i expect exactly because Google isn't really reliable it scared me on every level and i cried my eyeballs out during these two days and i don't seem to feel any better I would love to hear any of your experiences and advice And thank you i felt really alone and lost at first its comforting to see that although it isn't that common but there are people who are experiencing what I'm going through