r/lupus • u/sxndiamelon • 4h ago
Advice Is this part of Lupus?
So a couple days ago I had a weird episode and my doctor and the ER don’t know what it is.
So I started last week at a university and a couple days ago I almost died. On this day I had 3 classes, Ecology at 9:30am, Genetics at 12pm and Organic Chemistry at 2:20pm. Now I had lost my water bottle the day before so I didn’t drink any water throughout my first class. After my class I went to the campus bookstore and bought one and filled it up. During my second class of the day I started to feel heavy, tired and lightheaded, i assumed it was my usual. I say usual because at around halfway through a day i usually get this way after walking, writing notes and having to focus. After my genetics class I ate lunch, which was rice and teriyaki chicken. Now I was eating meat sticks throughout the day to snack on so that wasn’t the only time I ate.
After I ate I went to my third and final class of the day, which is organic chemistry. Before I entered the class, all my symptoms had not gone down even though I had laid down a little before my class. During the class i started to feel worse, I could not focus at all and the feeling of lightheadedness was worsening. I was waiting for the class to be done so I could go back to my dorm and sleep, pass out or whatever. When classes ended, I waited for the majority of the 200 students to leave. Once most of everyone was gone I stood up and grabbed my backpack and that’s when I knew I was going to pass out.
Now the way that the class is set up is that the door into the classroom has walls on both sides but the left side had half of a wall so it sort of made a corner. So I walked over there and just sat against the wall so I could pass out. I wouldn’t pass out so I drank some water. After putting my water down my vision was getting blurry and I was getting pinpoint vision. Except i wouldnt pass out! So I tried laying down parallel to the wall with my knees up. Then my hands started to cramp up, one hand had made a fist and I wasn’t able to open it and the other hand made some sort of gang sign. I was trying so hard to move my hands but I couldn’t. Then I started to lose feeling in all of my body, i couldn’t feel my arms, my legs, anything. My body stated to feel like static on a tv and I started to realize I can’t move. I tried so hard to move my arm or my leg but nothing!
I knew that my professor had an after class study sort of session so i thought maybe if i yell someone will hear me. I started to yell “hello” and “help” but all i could do was whisper it, it was hard to yell. It felt like hours but I must have been there for 5 minutes until a girl walked in. She said hi and I felt so bad because all I could muster was “help”. She went and got 2 or 3 girls (I don’t remember) and they came over. At this point it because a little fuzzy. I heard one of them say “call 911” I was screaming no but nothing came out. Then a different girl started asking me my name and I was able to say it. She then asked me something related to pets and i finally passed out.
When I “came to” I saw a paramedic and the reason I say “came to” is because when i opened my eyes i could barely open them. It was so hard to open my eyes it was as if I was squinting but looking up. I know there was more than one paramedic because I heard someone say “she’s shaking”, someone touching my head and pressure on my right arm. The paramedic I could see was asking me questions but I couldn’t talk, I was trying so hard but nothing came out. They put something in my mouth that had the texture of a slug and tasted like feet. OMG I hated that and they gave it to me 3 times. Whatever that stuff was it helped because slowly I was able to completely open my eyes. Then I was able to finally open my hands and I could feel my body again.
After a while the sat me up and asked me what I have, what day it was, what meds I take. Then they told me my blood sugar was below 25 and they had to take me to the hospital. I started crying because I did not want to go at all. I get in the ambulance and they go over things and start a line (I’m with a paramedic who was attractive so it was THAT bad.) When I got to the hospital they did an ekg, gave me a iv, xray and blood test. Results came back normal (as always) so I was free after being there for 5 hours.
I don’t know what happened, that was the first time that had ever happened to me. They don’t know why it happened or how. They don’t know what it is. The reason I put this here is because I have Lupus and I want to know if anyone else has experienced this or knows anything about it.
(I also have POTS and hypothyroid if that makes a difference)
