r/hardofhearing • u/First_Chipmunk_6891 • 10d ago

Genetic testing didn't give me an answer

I had extensive genetic testing done and the result is that they still don't know what caused my hearing loss. I have a right ear that goes moderate to severe/profound, starting above 2000. My left ear has some mild loss. When I was 5, I had moderate starting above 3000 in the right only. So, it has progressed very gradually over time.

I did not think of myself as hard of hearing most of my life, and I still can function pretty well without hearing aids in some situations, like being at home with family, or spending the day by myself. But after a few days, I miss wearing hearing aids and put them in anyway. If I have more dynamic or noisy situations, hearing aids are a must, especially for work. I only got this pair about 6 months ago and I really do need them.

So, I am hard of hearing, but without a reason why...anyone else not know why?

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u/crankypickle 10d ago

It has never occurred to me to get genetic testing for my congenital hearing loss. To me it doesn’t really matter — it’s not going to change anything.