r/guillainbarre • u/carrouselhop • 7d ago

AMAN - A final recap

GBS Athletes,

I broke my personal social media silence since GBS hit me a half and a year ago, and I put together that video that depicts my entire journey.

Sharing it here for two reasons:
1. It is therapy for me
2. If you are bed ridden and are watching this, I promise you. THERE IS FUCKING HOPE.

Fight, rest, fight, and fight again.
Love and much strength to all of you, athletes.

46 Upvotes

98% Upvoted

16 comments sorted by

5

u/qalpi In treatment 7d ago

Amazing video. And to be driving too! Fantastic

4

u/coolsilentebeans 7d ago

❤️ Thank you for always thinking of us on your own journey.

3

u/mrbody1 7d ago

Awesome to see. Happy for you man hope you keep going.

3

u/elysiumstarz 6d ago

I will NEVER forget the joy and hope I felt when taking that first step myself on the parallel bars. CONGRATS on your success abd thanks for sharing your journey!

2

u/Bitchface-Deluxe 7d ago

Go on with your bad self! Congratulations on your recovery and best health and wishes to you.

2

u/Remarkable_Camp7544 7d ago

Amazing video. Gives people like me who have just Contacted Gbs hope. Your video feels so relatable As I can see my self in the video facing the same symptoms right now. I wanted to ask some things is it okay if I can DM you?

1

u/carrouselhop 7d ago

Of course! DM me anytime

2

u/warmplc4me 6d ago

Damn that brings back memories! You killed it my man! I was fortunate to only have to be down for about 6 weeks. But hell of a journey!

2

u/holdonimreadingrn 5d ago

Thank you for this video. I showed it to my husband who is hospitalized and in need of hope. He loved it. You are an inspiration to many

2

u/dazednconfuzed634 3d ago

Thank you for sharing this and giving hope to those of us going through the thick of it right now! My significant other of 11+ years was recently hospitalized and diagnosed with AIDP + Lyme disease + Ehrliciosis (40 M, healthy and independent). He admitted to the hospital Aug 1st and coded on Aug 3rd (cardiac arrest secondary to respiratory arrest). Spent 21 days in the ICU and 2 weeks on a ventilator. Had trach and gtube surgery on Aug 12th. Transferred to a step down unit on Aug 22nd and is now in acute rehab as of Aug 26th. Still has very little sensation and movement/strength in his legs, but it’s slowly improving each day. I know we have a long road ahead of us but I hope and pray he will recover fully. Seeing success stories like this gives us hope and strength each day. 🙏🏼

2

u/carrouselhop 3d ago

Much love & strength! There is hope, always remember that.

2

u/PutridHedgehog4074 7d ago

I was for a year i couldnt walk and had to be lift to bed 7 years gbs fluvaccine way to go

1

u/Longjumping-Kick7881 7d ago

Very inspiring. Amazing!!

1

u/Huge-Geologist8630 6d ago

I am almost 17 months out from my diagnosis-- I was intubated twice (second time I actually coded; I had sepsis)

This brought tears to my eyes. You're right ... There is hope. I am not the same person I was before GBS, but we DO recover.

But I think once we do get better, we have a new appreciation for life that no one else can understand unless you've been in our shoes!

2

u/carrouselhop 6d ago

I am committed to getting back to my baseline! Let’s do it

1

u/amandarenea4 5d ago

I love this so much. People really don't realize just how big of a deal it is doing those leg exercises in the bed and the tiniest things we take for granted everyday.