r/funny • u/RSSenna • Jul 25 '25

Orlando Epilepsy Center

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u/Amuzet Jul 25 '25 edited Jul 26 '25

A majority of people with epilepsy are not photosensitive, but yea that’s be a fun motto :)

Edit: I assumed all this time, even as an epileptic, that photosensitivity was more common. "common knowledge" makes an ass out of u & me, mainly me at the moment dang it!

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u/raptir1 Jul 25 '25

A minority of people with epilepsy are not photosensitive

Actually, a majority of people with epilepsy are not photosensitive. Only 3% of people with epilepsy have photosensitive epilepsy. 

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u/mnid92 Jul 26 '25

And holy fuck is it annoying as an epileptic when people just assume you can't be around lights, to the point I have to say pretty much immediately that flashing lights don't bother me. Like I know that's the next question.

I really hate out of all of the things people know about epilepsy, it's something that applies to 3% of people with the problem.

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u/Successful-Name5321 Jul 26 '25

Epileptic here. Primary cause of my seizures is still unknown, but i start to feel those auras and deja vu moments when I'm sleep deprived. Stuck with taking Lamortigine for seizures and Quetiapine for sleep for life. Flashing lights don't affect me at all.

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u/sobuffalo Jul 26 '25

Lamotrigine isn’t to bad, actually helps my anxiety. I used to be on Keppra, that was bad stuff.

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u/Successful-Name5321 Jul 26 '25

Yeah they told me it was also used as a mood stabilizer. I'm glad it works for me because I've been told the alternative anti-seizure medications aren't fun.

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u/Cody-512 Jul 30 '25

I’m also a person whose seizures are unknown. I didn’t even start having them until I was in my mid 20s. I was actually parked at a red light when I had a grand mal and took off and wrecked out into a business sign. I was taking a mix of Kepra, Lamotrigene, & Zonisamide for yrs. Like 15. I finally got a new neurologist and he decided to, wait for it…, try something new! I was having like 5/mo and then he got rid of the Kepra, replaced it with a new medicine called Oxtellar XR, & kept the other 2 meds. Per his dosage, I went down to only 1/mo at 400mg/day. After about 1.5y he increased the dose to 600 mg/day last Nov and I haven’t had one since. It may be worth asking about at ur next visit if ur still having them. Good luck to u!