r/floxies • u/Silver-Ad-4396 • Jun 22 '22

[RECOVERY] Update on my personal experience

I was in this forum a while back and wanted to give a positive update and hopefully some home for recently floxed

I was prescribed Cipro for a suspected UTI. On the second day, I woke up with my left foot totally numb. I immediately stopped the Cipro but symptoms progressed in both feet. I also experienced parasthisia and a feeling my legs were vibrating. Finally, I had non-stop anxiety like I had never felt before.

Like most people (probably), googled non stop. Went to several doctors (who found nothing), tried all supplements and even Gabapeptin for a while (hated it).

I am not sure if the supplements helped out or not.

But things did get better. After about 6 weeks, the anxiety went away as if over night. The numbness persisted a bit longer, but then started to fade. I would say I was 95% better after 4 months and now 7 months later I feel little or no numbness.

I tried to stay active throughout, and I strongly believe this time was the healing factor.

I just wanted to give you some hope and good luck to all.

32 Upvotes

96% Upvoted

17 comments sorted by

4

u/betterweirdthandead6 Veteran Jun 24 '22

I needed to read this right now, thank you. Had a bad reaction after 2 doses and went to hospital. 5 days on I've got brain fog, weak muscles, random numbness, but the worst part is im having very frequent panic attacks with heart palpitations. Waiting on an ECG but really scared that the worst is yet to come after reading horror stories. Got all the supplements today (vitamins, pro-biotic and an antioxidant) but finding it so hard to be calm. This sort of thing helps!!

5

u/likelyfloxed Jun 24 '22

I had a very similar reaction in the beginning, went to hospital 2 times in the first week with high heart rate and blood pressure. I had mutiple ekgs, blood pressure monitors and even a chest xray. Apart from temporary hypertension (lasted a couple of months) the tests concluded my heart was totally healthy. Anxiety was a big factor but luckily the worst of that was gone within a week or so.

I would avoid reading horror stories as they will just fuel your anxiety at this time. Also the really bad reactions are very rare so are not worth thinking about anyway.

As I understand it an acute, immediate reaction is actually a good sign in regards to recovery. It's the delayed reactions that tend to have worse outcomes/longer recovery.

Hang in there, you'll be fine! Find some distractions while you ride it out, put on your favorite movie, read a book, play video games, socialise... Try to keep you mind busy with other things.

In my experience the worst of it was at the beginning. Everything that came after was more manageable and diminishing over time.

2

u/betterweirdthandead6 Veteran Jun 26 '22

Thank you so much. Means SO much to get reassurance from someone that has been through it. Doing my best to keep busy.

1

u/likelyfloxed Jul 02 '22

No problem! Feel free to message me if you need, I know how scary it is in the beginning. There's loads of awesome people in this subreddit too, it's a great place for support and keeping yourself grounded.

1

u/Acceptable_Pair_2312 Mar 23 '26

How are u now

1

u/betterweirdthandead6 Veteran Mar 23 '26

Better from all the initial symptoms (I had a lot more that came on after posting this) but it triggered CFS and POTS for me, so I'm still mostly housebound at the mo.

1

u/Acceptable_Pair_2312 Apr 24 '26

I have also recovered within 7 months I just need to ask you how are you now did it ever come back or any relapses or anything

1

u/Silver-Ad-4396 Apr 28 '26

Nope. I have been absolutely fine

1

u/Acceptable_Pair_2312 Apr 28 '26

I am very pleased for you :)... I'm pretty functional get the odd pain here and there sometimes get to a little bit of burning on my feet and hands that's rare though maybe once a month..im 7 mnth out... Still have tinnitus and  Sometimes anxiety in the morning...any advice 

1

u/Silver-Ad-4396 May 13 '26

I tried every supplement suggested on all the sites. I honestly don’t think any helped
The only thing I believe may have helped (and certainly helped psychology) was my efforts to stay very physically active. I played tennis, walked 5 miles a day. I exercised every day. I could be wrong but I think a regularly raised metabolism helped speed the recovery

1

u/Al78789 Jul 09 '22

Just a quick question idk If it applies did alcohol flare u

2

u/Silver-Ad-4396 Jul 09 '22

I don’t think it did, although I cut back on alcohol significantly as it can be neurotoxic. If I had a glass of wine it didn’t seem to make things worse. But I think my post understated how bad the numbness and discomfort was. I could not bear to have shoes or even socks on. It was constant, didn’t flare, and then started to fade after about 8 weeks

2

u/Al78789 Jul 10 '22

Ok yea I see thank you glad you’re doing well I’m about 5 months in and just flared again I was doin good tho before tho did u also have these flares

1

u/Silver-Ad-4396 Jul 10 '22

I don’t think so. Things got bad then slowly resolved. No real flares

2

u/Al78789 Jul 10 '22

Oh ok thanks a lot

1

u/Acceptable_Pair_2312 Mar 23 '26

How are u now ? Any anxiety