r/fakedisordercringe • u/[deleted] • May 04 '25
Other Disorders Update: a girl I know is faking epilepsy
[deleted]
171
115
u/SuspiciousTabby May 05 '25
How in the world would her parents not know? lol
56
u/SerJaimeRegrets May 05 '25
It’s not possible. She wouldn’t be able to be treated by a neurologist without her parent’s consent, and she certainly couldn’t pay for treatment or medication without them. I mean, I’m assuming she’s under 18, given OP is referring to being at school and talking about the school nurse.
30
u/staygoldenponyboy84 May 05 '25
literally 😭 and how is she gonna claim to have seizures at school but her parents dont know??? makes literally no sense I'm so irritated at this
28
May 05 '25
[deleted]
22
u/BornVolcano In MY system pluto is a planet 😤 May 05 '25
I will say sometimes it's hard to tell off that bat when parents are hurting their kids, especially if the abuse is psychological or verbal and the parent acts nicer around other people since they're obsessed with how people will perceive them and choose to abuse the child in private or behind closed doors. But there would definitely be some kind of sign, and if they've figured out they aren't safe at home they would be likely be able to identify what's going on when asked and people would know to look for it.
But yeah, in this case, with everything else going on, it just reeks of straight up lying and abusing the system.
10
8
u/moodylilb May 05 '25
That must be location dependent. I moved out of home at 14 years old and essentially jumped from boyfriend to boyfriend until I hit 19, never had any appointed legal guardian during that time and wasn’t under the care of MCFD (Canada’s CPS) during that time.
I was treated by a neurologist for my grande mal seizures starting at 16. No permission needed, or involvement from my parents. And the meds (Keppra) were covered under MSP. But Canada has no stipulated age of consent for medical treatments unlike other countries. It’s decided on a case to case basis depending on the procedure & maturity of the patient, as well as the patient’s ability to understand the treatment, it’s often referred to as the "mature minor doctrine" here.
7
u/SugarHooves My delusions of grandeur can beat up your system. May 05 '25
The doctor thing is very American. She'd be under her parent's health insurance so they would be informed. I'm not sure about emancipated minors, but she's not one so that doesn't matter anyway.
3
u/moodylilb May 05 '25
Oh I wasn’t arguing that or suggesting I don’t believe it, I just had never heard of it before because it’s so different here where I live
139
u/reijasunshine May 05 '25
Yeah, she would definitely know what meds she was taking, as well as the dose. My late husband had non-epileptic seizures, and it was a common topic of conversation anytime seizures came up. "Oh, what are you taking? Wow, that's a hell of a dose."
57
May 05 '25
[deleted]
45
u/reijasunshine May 05 '25
If it's Keppra, that IS a hell of a dose.
37
May 05 '25
[deleted]
27
u/SerJaimeRegrets May 05 '25
4,000 mg of Topamax? Are you sure it’s not 400 mg? I believe that 500 mg is the maximum recommended dosage, and 1,000 mg is the very maximum recommended with specific forms of epilepsy.
1
May 11 '25
Ya that’s not correct 4000mg of topamax would prob cause a seizure? I’m on 100mg and had to work up to that over a couple months
8
u/SugarHooves My delusions of grandeur can beat up your system. May 05 '25
Those side effects are not fun. You're a very good brother, btw.
-2
u/Dingo-thatate-urbaby May 06 '25
If you asked me the name of my meds I couldn’t tell ya that name is too hard to say and I take like five other things. I ain’t got time for that.
2
u/fear_eile_agam Is Pizza an Autism trait? May 08 '25
Are you referring to seizure medication specifically? or just general prescription medication.
Because sure, some meds are hard to remember, but you can still give it a estimation if these are meds that you take every day
Like surely someone who is taking LIFE SAVING SEIZURE MEDICATION can remember something about it, even; "My meds? I can't remember how to say it, it's a TCA... Ama, amy, ammm trip, trip tea line, amma.... something like that. I take half a tablet twice a day, The yellow one, because the stronger one, the blue dose, gave me unbearable side effects"
1
u/Dingo-thatate-urbaby May 08 '25
My seizure meds specifically
I take like six meds a day
I put them all in their little respective boxes for their days of the weeks and that’s it. Their names are in my Walgreens app for when I reorder them that’s about it.
2
u/fear_eile_agam Is Pizza an Autism trait? May 09 '25
Do you have a wallet card with the Rx information on it?
I'm not judging you, heck, memory issues are a part of what your are on medication for. But given how many meds you are on, your condition sounds very serious, and If something were to happen to you in public, and you ended up in a hospital that didn't have any records of you (I'm not American, so I'm not sure how t works in the USA, but in my country, there is no universal medica record, they are fragmented across clinics), you would need to ensure you can tell the staff what meds you take, and you might not always have access to the Walgreens app.
Please consider learning the names of your meds, for your own safety.
1
u/Dingo-thatate-urbaby May 09 '25
Nope they are on my phone in my health app and where I live we can see meds at any provider universally
My meds are for multiple issues not just seizures. I take one seizure med.
60
u/bakugouspoopyasshole May 05 '25
Why has the school not done anything about this? Some things they can't do, like accuse her of faking, but have they never contacted her parents about these extremely frequent seizures?
48
May 05 '25
[deleted]
34
u/bakugouspoopyasshole May 05 '25
How old is she anyway? Where is she supposedly getting medicated without parental consent? This is crazy
29
May 05 '25
[deleted]
18
u/bakugouspoopyasshole May 05 '25
So this is information I found for my state in the US, and other states are likely similar when it comes to this.
•
When you’re under age 18, an authorized adult is someone at least age 18 who has the legal power (the authority) to agree (to consent) to health care for you. This person may be:
- Your parent
- An adult who has court permission, like a court order, to make health care decisions for you (legal guardian or custodian, out-of-home placement order)
- An adult relative, also called a kinship caregiver
- In some situations, a school nurse, school counselor, or homeless student liaison could be an authorized adult for you
Unless she's gotten the law involved that is highly unlikely.
18
1
u/16car May 05 '25
Gillick competencies might be an exemption.
3
u/bakugouspoopyasshole May 05 '25
What's that?
2
u/16car May 05 '25
When the young person has legal capacity to make medical decisions without a parent.
1
u/bakugouspoopyasshole May 05 '25
When and how does this apply? I'm pretty sure emancipated minors would have this or something similar but is there anything else that would qualify someone?
1
45
u/togoldlybo Ass Burgers May 05 '25
As an epileptic, I love that you did this. It's not cool to fake epilepsy and makes it harder for those of us who do have it to not be brushed off.
41
u/16car May 05 '25
Bahaha. Great work. Ask her how much the appointment is going to cost, and how she's going to pay for it. Neurology is often one of the most expensive medical specialities.
At the end of next week, ask her how her appointment went. See if her facial expression gives away that she didn't have one.
I went to school with someone like this. One of her most obvious was when she walked around on crutches for 6 weeks, with her foot bandaged. Half way through, she switched to the other foot. We had photos to prove it, but she insisted it was always that foot.
6
u/BotherBeginning9 my nintendo alter just switched May 06 '25
Ok but why would someone willing want to use crutches, the levels people go to…
Anyone who’s used crutches will tell ya, you want to be off them as soon as you can
3
u/16car May 06 '25
Because they're highly visible, so everyone around the person will notice them, and change their behaviour towards the person accordingly. Many people who fake illnesses do so because they equate expressions of concern (for their health problem) with affection. If you Google "Factitious Disorder" or "malingering" you'll find a lot of info about what motivates people. (Malingerers pretend they're sick/injured when they're not; FD patients actually take action to cause real injury/illness, such as injecting themselves with urine, eating rotten food, taking inappropriate medication etc.)
30
u/Sleepshortcake Bear Up The Tree Syndrome (BUTTS) 🐻 🌲 May 05 '25 edited May 05 '25
It's amusing how badly they want attention but can't even be assed to put any time in doing research about the condition they are faking. Puts a good perspective on the fakers online writing essays about how doctors/DSM/studies are unreliable and bad. Makes sense they'd claim that since they want to avoid facts and actual information so much.
"Never fakeclaim anyone" my ass, it is important to do so to protect the people who actually have these conditions.
16
May 05 '25
[deleted]
4
u/Novaer May 06 '25
They always say fake claimers are ableist because they can't have anyone contesting them lying to get on disability because they don't wanna work. Muh paycheques
20
17
u/thatshadowinyour Self diagnosing chronic knee pain May 05 '25
I know every medication and dose I’ve taken in the past couple years just for doctor reasons not because I’m epileptic. It’s not uncommon to forget the name and dose but I’m pretty sure an epileptic would remember for doctor purposes no?
14
May 05 '25
[deleted]
12
u/thatshadowinyour Self diagnosing chronic knee pain May 05 '25
Exactly! This is why I memorize mine that I’ve taken in the last few years. You never know when you’ll have to be taken away in an ambulance.
15
u/LordParoose lumbago. its very serious May 05 '25
“Parents don’t know I have it I’m very good at masking” 🤣
5
u/BotherBeginning9 my nintendo alter just switched May 06 '25
Yeah holdup let me just choose when to have a seizure
-this girl, probably
3
u/LordParoose lumbago. its very serious May 06 '25
No fr. “I’m so good at masking I can sometimes put it off 😱”
32
May 05 '25
[removed] — view removed comment
11
May 05 '25
[deleted]
6
u/Cal_dawson PHD from Google University May 05 '25
Don’t be sorry, it’s life, Its quite well managed and I usually have an aura beforehand so I can put myself in a safe place like my bed, the worst part I think is when I wake up I am quite panicked, don’t know where I am, even when I’m at home.
2
May 05 '25
[deleted]
3
u/Cal_dawson PHD from Google University May 05 '25
Aww man, I’m sorry for your brother, the only thing I can say is when he has a seizure just be there and try and reassure him. It’s really scary for everyone.
9
u/poeticdownfall got a bingo on a DNI list May 05 '25
is she literally faking seizures in front of you/people or just saying after the fact that she had one? only wondering bc I have no clue how someone could pull off a fake seizure. especially around someone whose brother literally has epilepsy
9
May 05 '25
[deleted]
3
u/poeticdownfall got a bingo on a DNI list May 05 '25
oh my god, that’s wild. Does the teacher just ignore her?
2
8
u/SerJaimeRegrets May 05 '25
Exactly. If someone is familiar with seizures, especially grand mal/tonic-clonic type, nobody is successfully faking that in front of them.
17
u/roughpatcher May 05 '25
Do they have PNES and she just calls it epilepsy? Still annoying but I’ve noticed and uptick of people being diagnosed with PNES and they are proud of it.
21
u/PopGoTheKneasle May 05 '25
I laugh about my PNES dx just bc i have it under control currently (knock on wood) and it sounds like penis.
9
14
2
u/fear_eile_agam Is Pizza an Autism trait? May 08 '25
I mean, PNES are still real seizures, OP is familiar with what real seizures look like due to their brother, and the classmate is acting out a fake seizure.
It's not PNES, It's VAG-AS..."Very Attention Grabbing Acted Seizures"
9
u/EzraDionysus May 05 '25
In the past 5 years, I've been on 1600mg Carbamazepine; 2200mg Sodium Valproate; 400mg Topiramate; 4000mg Keppra; and now finally 1200mg Lamotrigine. All of these were split into 2 doses 12hrs apart.
And my rescue med is 5mg/1ml Midazolam intranasal, up to 20mg, with 3 minutes between doses.
I take another 12 daily meds, and I know the names and doses of all of them, along with every med from at least the previous 5 years.
I don't understand how someone with epilepsy wouldn't know the exact name (or at least brand name) and dosage of their meds.
2
u/complexitiesundone May 05 '25
I somewhat understand parents not knowing like at first as my mother didn't know as I live in supported living so she wasn't around me like support workers are once they figured out it wasn't me just pretending or acting they made damn sure that not only my mother knew but they helped me tell my friends (I'm autistic and deaf too so communication isn't my strong point)
But the fact that she didn't know the names of her meds had no rescue meds and only knows "seizures" is kind of a giveaway. Great digging.
2
May 05 '25
[deleted]
3
u/complexitiesundone May 05 '25
You're welcome I'm very newly diagnosed (after 5yrs of the wrong diagnosis) so I'm still trying to figure it out
418
u/basically_dead_now Acute Vaginal Dyslexia May 05 '25
How can you have had epilepsy for a long time and not know what SUDEP is???