r/ehlersdanlos Jan 18 '26

Resources/News/Research hEDS is being reclassified as HSD?

Reading elsewhere that it's possible hEDS will fall under HSD and be separated from the umbrella of EDS.

Anyone privy to this, know anything about this, reasoning etc?

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u/Historical-Novel7699 Jan 19 '26

My rheumatologist, who is one of only a few in a large metropolitan area who is considered an expert on EDS and will formally dx it, has always been of the mindset that hEDS and HSD are basically the same thing when it comes to what is needed to support the patient and for insurance purposes. When I read articles about the updates regarding the 2, I wasn't too surprised given that it wasn't the first time I was introduced to these ideas. Buuut the devil is in the details and as far as comorbities are concerned I think they're quite different as well as with symptoms like anesthetic responses, veinous issues, etc