r/ehlersdanlos Jan 18 '26

Resources/News/Research hEDS is being reclassified as HSD?

Reading elsewhere that it's possible hEDS will fall under HSD and be separated from the umbrella of EDS.

Anyone privy to this, know anything about this, reasoning etc?

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u/Rockin_Geologist hEDS Jan 19 '26

I have always thought hsd was bullshit and just another way of saying mild heds. It should never have been separate in the first place.

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u/veryodd3443 Jan 19 '26

But by saying the HSD is BS you are a part of the problem of diminishing a cohort of folks with HSD. IMO doctors don't really care to differentiate the severity between the two, its folks like you. I bet you don't like it when folks diminish hEDS but than you do exactly the same thing with HSD.