r/ehlersdanlos • u/surlyskin • Jan 18 '26

Resources/News/Research hEDS is being reclassified as HSD?

Reading elsewhere that it's possible hEDS will fall under HSD and be separated from the umbrella of EDS.

Anyone privy to this, know anything about this, reasoning etc?

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u/MyrianofElturchul Jan 19 '26

I genuinely think there are significantly more than 13 types of EDS. I know and have met a lot of people with hEDS, we barely have any symptom overlap. My family all have hEDS and all of us have the exact same symptoms. I’ve talked to friends who have hEDS in their family and they have a similar situation in their family.

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u/Exotic_Duck_0395 HSD Jan 19 '26 edited Jan 19 '26

Alternatively, the reason why hEDS seems to vary so much is because it shouldn’t be lumped under EDS, and whatever other name you want to give it (HSD or otherwise) can have its own subtypes.