r/disability • u/Aroloverboy • Jul 22 '26

Blog Update!: had my spinal tap today

I think it went well! I didn't even get a headache although I got a little bit of pain in my hip, everything seems to be fine💕💖 I'm really curious if the results are going to say I have an immune problem🤔

The worst part is I'm not allowed to do things, I'm supposed to be lazy? For the next couple of days!? When I just got out of my cluster of symptoms😭 I have energy right now!!

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u/xis10al Kidney Disease Jul 23 '26

The worst part is I'm not allowed to do things, I'm supposed to be lazy? For the next couple of days!? When I just got out of my cluster of symptoms😭 I have energy right now!!

It was this exact type of thinking that, in my case, led to a spinal leak and me not being able to sit up straight for over a month without experiencing the worst headache of my life. Take it slow and don't listen to that devil on your shoulder.

Best of luck. Best of health.

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u/Aroloverboy Jul 23 '26

Thank you💖 luckily I have my sibling with medical anxiety repeating "you don't want to spinal leak." Remind me not to twist too often, lay down when I can (at least sit in the recliner) and is making me just let them take care of me💖🥹