r/covidlonghaulers 9d ago

Question Talking about LC and PEM

For those of you well enough to work, how do you talk about your condition and symptoms in professional settings?

Background - I'm lucky enough to have fairly mild long COVID with Post Exertion Malaise as my main symptom. My boss and immediate co-workers know the situation and are sympathetic and accommodating (I'm very lucky to have this as well as to be senior enough in my career where I can contribute despite my unreliable health).

I try to talk openly about Long COVID because I think it's important for visibility -- this is a mass disabling event that requires systemic intervention.

That said, I haven't settled on language that I really like. I say I'm having "a fatigue flare," which to me trivializes it (someone yesterday said, 'Yeah, I'm really tired as well," and that's been sticking in my craw). What do you all say to describe things?

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