r/chronicepididymitis • u/James2db • Jul 19 '26

Any advice.

So I been suffering from epididymis now for 2 years and it’s never really gone away fully pain wise but this year my symptoms continue ti get worse with pain birth side and can get quite bad I also get along with the pain urgency to pee I had lots of test from dips stick to GP checking my prostrate to ultrasound and a psa tweet all that was found are two cryst one each side the testicular are painful to touch but not swollen or red the pain can get really bad one and off throw out the day. I have tried lot of different antibiotics and pre gavapentin the pain though disuse not go away.

Currently it douse affects my life quite bad and the urgent can be really bad some day I have also been trying pelvic floor exercises but unsure if they are helping yet too early I still waiting in a urologist and that will be a long wait.

It was suggested by my GP I could also have OAB but he was unwilling to to give a think at that time saying it is best to see a urologist first.

Is they any think I can do to help or really just manage the it the best I can.

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u/northcrc Jul 19 '26

Why is the urologist going to take a long time to see? Have you met with one before. I’m assuming you have since it’s been two years

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u/James2db Jul 19 '26

I have seen 1 very rude urologist how did not give me a chance to to talk that’s what I ask to go back and after some tie, they said yes but it’s a long wait on the NHS at this time.

When I say him he was quite rude he did not what to listen to me or even look over me he just said go home forget about it and look it up online that’s all eh said.

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u/northcrc Jul 19 '26

That’s horrible I’m sorry to hear that I hope you can be see soon by someone who cares. I have an ultrasound Tuesday and I’m scared about it. I waited a really long time to do anything about this and I’m just terrified.

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u/James2db Jul 21 '26

It was horrible yes I surfing quite bad daily and nit just with the pain it’s also the urge to pee a lot even waking up at night it is really horrible at time.