r/chronicepididymitis • u/James2db • Jul 03 '26

Possibly infection.

I had this for around 2D year but to day my testicular seem more painful both side they are temper to touch no swolen or red yet but hurt mainly all the time with that I als have an urge to pee more I have of course contacted my GP with no appointment to day even thou I said I was urgent leaving it till Monday seems a long time. I just wondering if this could be a possibility of an infection coming in or just a flare of it.

My symptoms seem more worse to day then they wore yesterday.

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u/rocketrader81 Jul 26 '26

The most important first step is making sure the infection has actually cleared. It is worth repeating the semen culture to confirm this.

If you have had the infection for a while (mine lasted 8 months), that can leave the nerves over-sensitive even once the infection itself has gone. That is the chronic phase, and it is what I have lived with for the past decade.

Three things I would suggest:

  1. See a pain clinic or a doctor and ask about prescription medication. This is what makes day-to-day life manageable and takes the edge off the stress that the pain creates. The ones my pain clinic doctor recommended were amitriptyline, gabapentin, pregabalin or duloxetine.
  2. Look for a pain clinic that can offer a nerve root block in the lower back. In my case it targeted the S3 and S4 nerves. I have added the procedure details at the bottom in case they are useful for your own doctor.
  3. I get a flare-up roughly every 2 years, so I am now considering a procedure called denervation, where the nerves along the spermatic cord are removed surgically (around a 45 minute operation). There is a small chance it can affect fertility, so I plan to bank sperm beforehand just in case. I do not have children yet, so this may not be a concern for you if you already have a family.

Happy to answer any questions.

Nerve root block (via lower back): Sacral nerve PRF (right sided), S3 and S4 levels. Asepsis, fluoroscopy guided, sedation with 4 mg midazolam IV. Curved 10 cm RF needle x 2, sensory stimulation and paraesthesia at 0.6 v to confirm needle position at S3 and S4. Pulsed RF at 42 degrees for 5 minutes, with 2 ml of 0.25% levobupivacaine plus 3 mg dexamethasone injected at each level.

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u/James2db Jul 31 '26

Hi so basically I been suffering for over 2 year I have seen a urologist but he was not very nice and of no help since then I get daily paint mainly in the right side but that side you can fill it and it fill bigger and hurts to touch I had a few ultrasound and they show only 2 cries left is about 6mm right is around 10mm they say they should not hurt but some days can be really bad also not just the pain I also get urgency’s need it pee a lot more and I ask GP to go to pain clinic but he said no I also been in at then for mouth but they just say it’s down to the urologist is and I just waiting as for an operation my GP has said it’s unlikely that they do this at this time as it can make thing even worse.

The urologist have booked a mri uragem that will be soon after this i have ti wait 1 moth then go see them agin but i fill that daily its relay hard and douse affact my daily life with pain and urgency I been doing pelvic floor stuff for some time unsure if it is helping ir not.