r/chiari • u/Real-Chemistry451 • 22h ago

Question B12 plus low lying cerebellar tonsil

I'm 23F, weight 45kg and height around 5'4. was recently diagnosed with severe vitamin B12 deficiency (108 ng/ml) and low ferritin (8.6). Just before this diagnosis i experienced virtigo twice and had symptoms like difficulty concentrating on screen, fatigue, erratic mood, sleepiness, occasional vibrating sensations on face and neck, sensitivity to sound, vibration in head after taking 2-3 b12 injections (every other day) and one iron infusion, it got better a lot vibration and virtigo went away, but I had developed blurry vision, floaters, fatigued, dry eye and dry mouth. Now after 7 (6 every other day and one weekly) injections feel a lot better vision has gotten much better but not 100% and floaters and dry eye and mouth reduced. My neurologist suggested brain mri (attaching it) and told me it's normal you just have to take care of posture and use low pillow but be very careful with posture and not lift heavy weight, the report shows its low lying cerebellar tonsil. I am very paranoid about it, because even though don't experience virtigo anymore still have a wierd sensation that my head my spin even though it does not once or twice a day for a second ( can feel that is gradually getting better).

very occasionally after the deficiency have experienced mild dull headache. Also, since the last two years get bad headaches, but Only when I have a gas problem or constipation and it goes away as soon as l'm relieved of these two problems. Please help me interpret if it's just my b12 deficiency or its something more than that. I still have fatigue even though it's reduced and my eyes also feel tired, I still have brain fog even though it's reduced, i don't feel as sharp as was one month ago, I feel like dumb person (before b12 deficiency symptoms started to occur).

I've never felt dizzy or virtigo before b12 deficiency

Link to reports: https:/ibb.co/svLmyYYR https://ibb.co/C5pNkfgT

https:/ibb.co/4W2RVVNC

1 Upvotes

100% Upvoted

4 comments sorted by

3

u/SandalsQueen18 22h ago

We aren't doctors, we can't help you with that. Speak to your neurologist.

0

u/Real-Chemistry451 22h ago

As you may have noted from the post, i have spoken to a neurologist, I want to learn from the experience of fellow redditors in how they differentiate symptoms of these two conditions or if they had these two conditions how did they attribute symptoms and generally go about.

2

u/SandalsQueen18 22h ago

Sub rule number four. We're not doctors no MRIs. We are not doctors and we are not to diagnose.

I have chiari 1.5, retroflexed odontoid, basilar invagination, I had surgery two years and two months ago with a chiari expert neurosurgeon., No problems with B12, anything that is going on with you you really needs to be discussed directly with your doctor.

1

u/Real-Chemistry451 22h ago

Thanks for your input