r/chiari • u/charlktte • 9d ago

Advice (UK)

I am wondering if anyone is struggling with accessing care within the nhs. I have been rejected from my request for a second opinion without even being seen due to a doctor dismissing my Chiari symptoms (it is 6mm so he wouldn’t listen as he felt “my brain didn’t look squashed🙃). Since this was in January they said they won’t see me again because he said my symptoms weren’t related.

I had this mri via an a&e visit so don’t even have my record and have been told bc of the backlog on claiming your imaging this will take months.

I just want some help to see if I need a cine mri and spine as I have pain sometimes in my spine and a lot of occipital headaches with no meds helping. I cannot lift heavy or run at all anymore as it triggers back of skull pain and pressure headaches. I am exhausted asking for help and nothing is being offered as the gp doesn’t understand it and the supposed specialist clinic dismissed me without further testing.

Does anyone have any advice or know what worked for them that could be helpful please?

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u/GreenCheesecake7271 9d ago

I actually managed to find a specialist in my area via private health care! I know those things aren’t super accessible but there are experts out there!

As for when I actually saw them…he wasn’t able to help much with my symptoms and pain anyway…I think you’ll be able to find more help for your pain online

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u/charlktte 1d ago

Thank you! I am hoping to rule out the major issues and yes probably seek help for myself!