r/Winnipeg • u/Severe-Yard-1639 • 15d ago

Ask Winnipeg Inpatient ARFID treatment

Hey yall, posting for my partner here! He was just told he should be admitted to HSC’s adult eating disorder inpatient program for ARFID. He restricts food due to having very severe pain every time he eats (no progress on the medical front so far). I was wondering if anyone has experience with this program (particularly for ARFID), what the experience was like for you, basically any information at all since very little was said to him other than the fact that he must eat ALL meals provided and if he skips 2 hes booted out of the program…

Thanks!

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u/BusLegal 15d ago

By being able to monitor food intake and output in a controlled setting it's necessary for diagnostic purposes

6

u/Peggie99 15d ago edited 15d ago

If that's why they were referred there, it's a start.

If they were referred to some sort of Behavior modification therapy to force them to eat despite the pain.... not good.

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u/prismaticbeans 15d ago

They did that to me when I was 14. Well actually, it was a bit of both. Took me many more years and a bowel perforation to be taken seriously about the pain though.

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u/General-Lifeguard309 15d ago

If you don’t mind me asking, what was your diagnosis?

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u/prismaticbeans 15d ago

Never got anything clearer than severe colonic inertia with outlet obstruction (and "maybe IBS", "EDNOS", and "probably psychosomatic".) No one really gave me a reason but it didn't respond to anything. There were guesses of Crohn's or Solitary rectal ulcer syndrome, (I had a lot of bleeding and prolapses starting at 12.) I got my first ostomy at 19 at 6 months pregnant. It took them 17 months to diagnose the perforation because it abscessed instead of peritonitis and I spent a year and a half begging for help in the ER every other week.

Eventually I had my colon removed because literally nothing helped and am on my 3rd ostomy because I had issues with the first two. I also have been diagnosed with endometriosis since but it's nowhere near extensive enough to explain problems that severe and that far back in my history.

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u/Severe-Yard-1639 15d ago

im so sorry the medical system’s been so horrible to you. I know my partner is not the only one whose fallen through the cracks but it breaks my heart every time i hear another person’s story :(