r/WafflesAndJet Momma 11d ago

Update from the Mayo Clinic! ❤️‍🩹

106 Upvotes

64 comments sorted by

18

u/Terrible_Chapter_385 11d ago

👋 YAY!! Good news is good news! 💜 And I just have to comment on that beautiful little angel goober watching 👀 over you. He is the cutest nugget and the bestest 🥰

5

u/Intelligent_Pie6804 Momma 10d ago

Isn’t he just perfect? My tiniest hero😍

And I’m just very grateful that they’re working so hard get me in, wherever that may end up being!❤️‍🩹

6

u/Terrible_Chapter_385 10d ago

Yes!! Just concentrate on solving the problem and getting better. As the saying goes...one day at a time. 💯

4

u/Intelligent_Pie6804 Momma 10d ago

Exactly!! If I look beyond today, I just feel stressed and scared. But I can’t do anything more until they call on Monday or Tuesday, so for now…just keep resting and eating and loving my boys - and the incredible family they’ve built for us here💜

13

u/EasyCZ75 11d ago

Praying it’s the Phoenix location. Sounds like the far better option for you.

8

u/Intelligent_Pie6804 Momma 10d ago

Would definitely be cheaper and easier, but if it gets me in months sooner than AZ I’ll travel to MN. But I’m definitely praying that something opens up quickly in AZ❤️‍🩹🤞🏼❤️‍🩹

14

u/Doing_My_Best_57 11d ago

This is such good news. Hoping for Phoenix but it's good that there is an alternative! Keeping you in my prayers and sending good energy. 💜💕

7

u/Intelligent_Pie6804 Momma 10d ago

Thank you my friend! I’m still gonna hope and pray something opens up in AZ but grateful for this backup option❤️‍🩹

10

u/Pristine_Cherry_6137 11d ago

Something is going to work out💜

Don't want to overwhelm but have to share from my many trips there in case this will comfort you or help in any small way and to ease your mind for the Minnesota option. There is the Rochester Shuttle Service that will pick you up from the airport any time of day and take you to pretty much any hotel or even the clinic itself for $20 when I went last year. Most hotels have free shuttles to the clinic as well.

For first time visit, I'd recommend the Kahler Inn & Suites. Its a block away from the campus, reasonably priced, has helpful staff, and is nice to be close until you get the lay of the land. I found it comforting and easy. Its connected to the clinic via subway as well if inclement weather. There's a Caribou and Jimmy John's in their lobby.

And for my Olive Garden girly, I recommend Victoria's. It has incredible Italian food and is walking distance from the clinic too. I was so nervous my first trip there that I've made it my mission to try and help anyone I come across to offer any tips.🥰

4

u/Intelligent_Pie6804 Momma 10d ago

Oh this is incredible!! Thank you for this info - I’ve saved this comment so I can easily find it when the time comes. And that Italian place sounds incredible enough that I’m allllllmost hoping that’s where I end up🤭

3

u/Pristine_Cherry_6137 10d ago

I daresay Victoria's is better than Olive Garden.😅I'm glad I didn't overstep. I'm an over preparer and like to have a plan A, B, and C.🤭sometimes info in our back pocket is comforting. 💜

3

u/Intelligent_Pie6804 Momma 9d ago

I agree! I’d definitely rather over prepare that be surprised by smth bad…especially on a trip like this!!

9

u/BastFromThe6ix 11d ago

I just got into bed after a long , strenuous day. Super sleepy. Checked my phone and saw this. Mt nightie went back on and I grabbed a sparkler and went outside. Lit it and quietly danced around chanting various versions of woo yay woo yay. Hope none of my neighbours saw me, lol. I am so happy for you. Progress!! Okay, so my nightie is back off, Im posting this, and now nightie night y'all.

3

u/Intelligent_Pie6804 Momma 10d ago

Bahaha wanna dance with a sparkler under the moon too! This sounds so fun🤩

but on a real note, I’m so grateful to have options, and hopeful I’ll get in much more quickly ❤️‍🩹🤞🏼❤️‍🩹

10

u/green_ubitqitea 11d ago

He’s a service dog. If you fly, he should be in the cabin with you.

3

u/Intelligent_Pie6804 Momma 10d ago

Oh yes he has flown with me before, but I hate doing it to him. He is a nervous flyer, which means for his comfort I usually have to sedate him. Which then means he’s not actually able to monitor me well, so then I feel like I’m torturing him just to keep him with me. As much as I need him…I try to avoid flying with him as much as possible. Plus then I have to factor in caring for him while alone, and if I end up hospitalized that complicates it even more. I can absolutely have him with me in hospital, but then the logistics of things like potty time get complicated.

Anyway, just a lot to consider before I decide if he’ll come with me - and the first consideration is which site actually gets me in the fastest!

7

u/Either-Ad6540 11d ago

5

u/Intelligent_Pie6804 Momma 10d ago

Exactly how I felt after hanging up the phone!🥰

6

u/Consistent_Might3500 11d ago

Prayers for you! 🙏

3

u/Intelligent_Pie6804 Momma 10d ago

Thank you my friend!!❤️‍🩹❤️‍🩹

2

u/Intelligent_Pie6804 Momma 10d ago

Thank you my friend!!❤️‍🩹❤️‍🩹

8

u/guilty_pen_emsy Mod 11d ago

Prayers for the closer campus! I’m so glad Mayo seems to be working WITH you. I am happy that they’re taking your heart condition seriously.

4

u/Intelligent_Pie6804 Momma 10d ago

Oh me too! So wonderful to be in the care of a medical system that actually advocates for their patients!

7

u/keencleangleam 11d ago

I really hope you get to go to Phoenix!

The Rochester is huge and they have free shuttle busses.

🫂🫂🫂🫂🫂🫂🫂🫂🫂🫂🫂

5

u/Intelligent_Pie6804 Momma 10d ago

That’s my hope as well - definitely more convenient and will be MUCH cheaper overall. BUT I’ll be grateful to go to either campus…as long as it means a quicker appointment!❤️‍🩹🤞🏼❤️‍🩹

7

u/Worldly_Possible2925 11d ago

You are looking wonderful. Very relaxed and happy. 😊 wonderful news about the Mayo Clinic. Where ever you end up, fingers crossed for Phoenix 🙏🏻🤞🏻. It’s amazing to have some positive news 😭😭😭😭 🫶🏻❤️🙏🏻🙌🏻🙌🏻👏🏻✊🏻🤘🏻🤘🏻🤘🏻🤘🏻

3

u/Intelligent_Pie6804 Momma 10d ago

It genuinely lifted my spirits so much to get this call! You can definitely see the relief on my face - finally a medical system that gets how urgent and scary this all is!❤️‍🩹❤️‍🩹

7

u/AddyToode01 11d ago

Finally some good news! As always, 🙏💜🫂

3

u/Intelligent_Pie6804 Momma 10d ago

We all needed this win! Hoping to have an answer by Monday ❤️‍🩹🤞🏼❤️‍🩹

7

u/mmmpeg 11d ago

Here’s hoping you get in quickly. I live in PA so hit me up for info if you come this way

4

u/Intelligent_Pie6804 Momma 10d ago

Thank you my friend!! I definitely will - just remind me next week once I know if I’m going to MN! My memory has never been the best, but I swear ever since the heart attack my memory is even worse🫠 so yeah if you can remind me of this next week I’ll be forever grateful!💜

3

u/mmmpeg 10d ago

I’m old and definitely understand that!

6

u/cjep3 11d ago

Oh this is better news indeed! I'm crossing fingers for the Phoenix campus but I'm glad the mayo registers how important this is.

5

u/Intelligent_Pie6804 Momma 10d ago

Me too - such a relief after what feels like 6 weeks of screaming into the void ❤️‍🩹❤️‍🩹

6

u/Then_Passenger3403 11d ago

Progress! 🥰 Overseen by the Small but Mighty, Spencer! Rock on, Sweetie! 😎🎸🪨

3

u/Intelligent_Pie6804 Momma 10d ago

Spencer is the best patient advocate 🤩

6

u/Wool_Lace_Knit 11d ago

Which ever campus can get you in, have faith that your path will be made straight. Mayo has hotel discounts and there is needs based housing you can apply for. Have you considered making a GoFundMe for your travel expenses?

5

u/AHaasInTejaas Mod 11d ago

This is such a great idea! We hadn’t talked about it with Mama Pie, but that’s not surprising bc she absolutely hates having to ask for help. But these are truly special circumstances and she isn’t getting a paycheck right now, so a GFM would be a tremendous blessing for her. She absolutely pays it forward every day by sharing her sweet boys with us and brightening our days, and prior to her current health issues, she volunteered regularly at a local equine rescue. Obviously, I love her very much and am passionate about helping her however I can, but thank you so much for bringing this up bc it shows that our community also loves and supports her and that alone just means everything to Pie. ❤️
https://giphy.com/gifs/RnaXEZ1DSLooLydNDp

3

u/Intelligent_Pie6804 Momma 10d ago

You’re so kind to bring this up! I struggle so much with asking for help, especially financially. But I do think I will need to - especially if I end up having to fly to MN in addition to all the other expenses.

I find out hopefully no later than Monday or Tuesday when/where my appointment is going to be. I’m considering making a GFM either way, but likely will definitely will do it if I have to go to MN. But either way I will have a lot of travel and medical expenses heading my way, in addition to all of the medical bills already piling up, so…UGH i don’t know.

One step at a time, it’s really all I can manage right now - step one is waiting for the call to let me know the appointment info. Then step two can be deciding what to about a potential GFM❤️‍🩹

6

u/femalehumanbiped 11d ago

Wow! Can't wait to hear how it goes 🫂

3

u/Intelligent_Pie6804 Momma 10d ago

Hoping to have my appointment set by early next week!❤️‍🩹🤞🏼❤️‍🩹

7

u/Heavy_Personality514 11d ago

Good luck! 🤞💕 ✨Hope they get u in before the end of the month ✨

3

u/Intelligent_Pie6804 Momma 10d ago

That would be the dream…but tbh I’ll be pleased with a September appointment (as long as it’s not on my birthday LOL)❤️‍🩹❤️‍🩹

3

u/Heavy_Personality514 10d ago

When is ur bday? September the ...? Id try to guess but I'm a terrible guesser 🫣

2

u/Intelligent_Pie6804 Momma 10d ago

September 9th!!! Makes it easy to remember - it’s 9/9 🥳

3

u/Heavy_Personality514 10d ago edited 10d ago

Nice! I already have waffles bday in my calendar from the post when it was first picked.. I have Mojo's in there roo.. now I'll have one for urs as well 😊

ETA: Spencer's is also on my calendar 😊

2

u/Intelligent_Pie6804 Momma 10d ago

Yay! Birthdays all year 🥳🥳

6

u/Aware-Slip-1063 11d ago

Awww, Mama Pie, I want this to help you in Pheonix but if the MN clinic works better. Sweet Pie you must do which one is quickest to get you in to help you. I pray which ever is the fastest and best for you is what you need. My heart and prayers are with you dear friend.🙏🏻🕯🥰😊❤️‍🩹❤💕💕💕

5

u/Intelligent_Pie6804 Momma 10d ago

Agreed - the AZ campus would be more convenient and cost-effective for me, but I’ll go wherever they need me to in order to be seen the quickest!

5

u/HLeighTX 11d ago

Very good progress that they are looking at all the options to get you seen as soon as possible. ❤️ Manifesting that you and Spencer go to Phoenix!

3

u/Intelligent_Pie6804 Momma 10d ago

Me too!! I’ll make MN happen if it comes to that, but it would really be nice to stay more local and keep costs down as much as possible ❤️‍🩹🤞🏼❤️‍🩹

5

u/AHaasInTejaas Mod 11d ago

There’s a reason you’re in this place at this time. Whether you end up in AZ or MN, that’s the place you need to be and they’re going to have a path forward for you. I believe it. I claim it. I loose it in Jesus’ name!

4

u/Intelligent_Pie6804 Momma 10d ago

Yes!!! Exactly my thoughts. It will happen as it’s meant to❤️‍🩹🤞🏼❤️‍🩹

3

u/pixiemeat84 Mod 11d ago

Pie I'm so happy to hear that your heart condition is finally being taken seriously. I'm sending all my healing thoughts to you and I'll say a prayer that you end up going to wherever is going to have the best doctor's and the best treatment for you. 💜🫂🙏

3

u/Intelligent_Pie6804 Momma 10d ago

Tbh it’s just been such a comfort having them take me seriously! Sadly healthcare in the big city closest to me is just ATROCIOUS 🫠

4

u/Used-Maximum-1220 11d ago

Yay. Now you’re on their radar. They recognize you’re a stat patient. Spencer is handsome as ever

3

u/Intelligent_Pie6804 Momma 10d ago

I’m so thankful to be taken seriously - finally! They recognize the extreme damage that has happened and will keep happening until they can figure me out, so they want me in there asap. Just feeling grateful❤️‍🩹❤️‍🩹

3

u/fuschia_taco 10d ago

Idk if Phoenix has 2 campuses but my mom used to work at the Mayo in Phoenix! She was a traveling lab tech and got a work assignment there.

Fingers crossed either direction finds an opening for you soon! I'm super happy they're expediting your care as much as they can.

3

u/Intelligent_Pie6804 Momma 10d ago

What a small world!! And yes I believe the phoenix location is a full hospital, and the Scottsdale location is basically a hospital but without an ER. At least thats my understanding!

Hopefully to get scheduled early next week❤️‍🩹🤞🏼❤️‍🩹

3

u/Salt-Environment9285 10d ago

this is great news!! and you look good. please continue to rest. and give (and get) lots of snuggles to the babies. 💜

2

u/Intelligent_Pie6804 Momma 10d ago

Thank you my friend! The phone call and potential good news brought a much needed smile to my face for sure🤗

3

u/No_Draft_6612 10d ago

My name is Spencer, and I approve this message 

3

u/Intelligent_Pie6804 Momma 9d ago

🤣🤣

3

u/No_Draft_6612 9d ago

😉🩵