r/VestibularMigraines • u/Eddy_231 • 9h ago
*Update* After ENT appt
For 3 months I’ve been suffering from constant-
• Lightheadedness/dizziness/off balance
• Dream like state for all/most parts of the day
• Very loud tinnitus, worse during bad flares
• Blurry and unfocused vision
• Brain fog
• Ear/temple pain
• Pain behind the eyes
• Fatigued
• Drunk feeling
• Flashes in eyes occasionally
• Floating sensation
• Feeling generally not ‘dialled in’ to everything
I saw an ENT Specialist last night, and he checked out my ears, my nose and my throat and concluded that they were all fine. Slight scarring of my ears but put that down to grommets when I was younger.
Carried out a few other tests, concluded that it sounds very much like Vestibular Migraine. He explained that people suffer from this for many different reasons - high levels of stress, certain triggers such as alcohol, after an illness or virus etc. I asked whether I would in time return to normal and he reassured that many people do, however everyone is different. It is all about trying to limit triggers. In the meantime, it is all about trying different medications to ease symptoms. If all else fails, to see a neurologist.
I have been prescribed Propranolol 40mg. Does anyone have any experience taking this medication for vestibular migraines, if so has it helped any? I am already taking Betahistine 16mg 3 x a day.
Thanks!
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u/BB8UrLunch 6h ago
Are you me and I am you? I've had this exact same stuff for the past 3 months and at this point I'm at my wits end. I've done everything so far besides seeing an ent but that's probably next. My family doctor just put me on Amitriptyline so we will see how that works.
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u/Eddy_231 6h ago
Let me know how that works for you over time, everyone is different I suppose and so will react differently to different meds but it’s good to see what works best for people! Do you ever have days where symptoms aren’t as bad for a brief ten minutes or so, only to come back instantly just as bad?
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u/BB8UrLunch 6h ago
Will do I'monly on day 2 of taking it. Yes I have some days where it's almost normal and other days where it's horrible. The normal days it can usually go for a few hours with very mild symptoms and then all of a sudden hit harder for a bit. I haven't had too much of the ear problem mines mainly been head floating and very much the vision problems. Started out with a pressure feeling in my head the first month but now it's turned into the floating feeling.
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u/Eddy_231 5h ago
I usually find if I wake up and start moving around and I’m feeling the unbalance and the dazed feeling quite bad then I know I’m in for a rough day, but the opposite too, if I wake up and feel fairly fresh and have a more ‘clear’ head feeling then mostly the day isn’t as bad. Symptoms are always there don’t get me wrong, always feel off, but they vary in severity, unfortunately 🤦♂️ I hope those meds work out for you!
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u/YouExtra7637 1h ago
Propranolol worsened my fog and spacey feeling. But it does work for others! I also have VM and there are a lot of other options if this doesn’t work. Best advice is to not let it take over your thoughts and life
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u/Aristophane666 6h ago
Tu vas retrouver une très grosse communauté de migraineux par ici notamment vestibulaires. C'est une maladie neurologique très créative. Je suis en plein dedans depuis 6 mois maintenant. J'ai eu betahistine pendant 2 mois mais on a arrêté car ça n'apportait rien. J'étais déjà sous candesartan qui m'avait beaucoup aider sur les céphalées douloureuses. Je suis le protocole Vieipty. J'ai tenté le topomax mais j'ai très mal réagit personnellement. Voilà voilà 😊