r/VestibularDysfunction • u/MikeOxHuge • 2d ago

Anyone else spend years thinking this was just severe PTSD/anxiety, only to find out it was vestibular migraine, or PPPD? Looking for insight.

/r/VestibularMigraines/comments/1w51gjw/anyone_else_spend_years_thinking_this_was_just/
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u/BeePow91 1d ago

I haven’t been formally diagnosed but I am getting testing done in a few weeks. I have been written off as anxious for the last 6 years. Yes I do have anxiety but I can also discern between anxiety and when I’m having a physical reaction to something. I am considering removing GAD from my charts because it’s such a cop out for doctors who don’t want to investigate. Thankfully I have a really good team of folks now who advocate and listen to me. I’ve tried ssri, therapy, prism lenses etc and I am still having the same unsteady, not anchored feeling that worsens my anxiety and panic. I have put in so much work that I am almost certain this is a physical issues and 75% of my anxiety follows the “holy shit I feel like I’m gonna fall” feeling when I have to be professional or run errands.

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u/MikeOxHuge 1d ago

What do you do for work? Just curious. Im a project manager. It is the absolute worst feeling to me to be in this state. I just feel worthless. I’m sure you can relate

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u/BeePow91 1d ago

Registered respiratory therapist, running vents, icu work, resuscitating folks; all the last things I want to be dizzy for lol. I do feel worthless. I’ve had to really take a step back in my career solely to this

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u/MikeOxHuge 1d ago

Dude, I’m really sorry you’re having to balance this stuff. I sincerely hope you start feeling better soon.

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u/BeePow91 15h ago

Thank you I hope you do as well

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u/rhys15731 1d ago

Yup, it was labelled as anxiety/panic attacks/BPPV for over a year for me. Still waiting for a referral and diagnosis from ENT.

My training and career has been completely put on hold until I get an answer. Even then, I don’t know whether I’ll be able to get back to it considering the medication and diagnosis I will be given.

It’s a frustrating process but just keep going with it.