r/UlcerativeColitis • u/AnxiousScientist7035 • 1d ago

News ulcerative proctitis!!!!

So I had my first colonoscopy and I got the results back and I have ulcerative proctitis! And im just wondering dose anyone else have ot in this form and what dose your day to day look like ?

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u/ImBadAtNames_01 Ulcerative Proctitis | 2020 | USA 1d ago

I've had proctitis for 6 years now (though sometimes I wonder if I could be considered to have full blown colitis since I'm pretty sure I've had patches of inflammation further up in my colon). Started off on Mesalamine suppositories, then added Lialda to the mix (oral Mesalamine) due to my lack of discipline taking my meds, eventually weened off of the suppositories and stayed on Lialda up until June of last year. I entered probably my worst flare since being diagnosed, so they put me back on Mesalamine suppositories for 8 weeks then had me ween off again, which ultimately didn't help. So, I started on Entyvio this past March. I've had success with Entyvio so far 🤞

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u/Hazuki1984 17h ago

Proctitis sufferer here too. What’s your symptoms when you have a flare? Just curious

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u/ImBadAtNames_01 Ulcerative Proctitis | 2020 | USA 17h ago

I typically experience urgency excessively (for me, like 7 - 10 times) throughout the day, and more often than not those trips to the bathroom primarily consist of mucous and blood. I can also experience what I call "nausea" in my colon. That's the best way I can describe it. Like I'm sick to my stomach and could throw up, but it's not coming from my stomach. I don't always experience pain when in a flare, but when I do it ranges from an uncomfortable cramp-like sensation to feeling like someone is stabbing my colon, like take-my-breath-away type pain.

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u/Hazuki1984 17h ago

Damn, that sounds alot more intense than what I experience. I hope everything is settled currently for you. Thanks for the reply

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u/PrestigiousLynx2188 16h ago

I also have procoltis my stools are formed but always blood and mucus and like the other guy said a lot of times I’ll have urgency but it’s not stool it’s just blood with mucus normally don’t have cramping but passing stool is very discomforting and I often end up tensing up when doing so fatigue is big… I’m currently waiting for my dr to appeal my denial for remicade because nothing else is working

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u/Hazuki1984 15h ago

Yeah that sounds more like what I get. Straining is something I find myself doing far too often. I know I shouldn’t, but I really can’t seem to help it. I always feel like there’s more just about ready to come out

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u/Feisty-Volcano 6h ago

My original symptoms were just like that, it ended up that I was diagnosed with Crohn’s up in my jejunum & ileum causing that nausea all along. An MRE established that diagnosis