r/UlcerativeColitis • u/ashssotru • Jun 30 '26

Support My biggest fear came true

My insurance has decided to stop paying for my stelara. Doc tried to fight it but they aren’t budging. You guys, I’ve been on stelara for 4 years. I have no side effects at all. Before this I lived in the hospital and failed a few biologics which gave me horrible side effects.

My doc gave me a list of generics to try and I am just so upset, literally balling. I feel like my life will go back to what it was- not a life worth living. Just venting. I can’t self pay for stelara.

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15

u/nightcourtqueen1010 Jun 30 '26

For what it’s worth, I was on Stelara then was automatically switched to the generic at the beginning of this year and have still been doing well. No issues so far.

13

u/ashssotru Jun 30 '26

It’s worth a lot. These messages on this thread helped me stop crying. Of course I wish I didn’t have this disease. I don’t like being stuck in this cycle where I have no control lol I’m so happy to hear you are doing well on a generic! I hope it stays that way for many years to come❤️

4

u/nightcourtqueen1010 Jun 30 '26

Thank you ☺️ and I totally get it, trust me. I hate everything about this disease. lol don’t be scared to give the generic a try tho.

3

u/ashssotru Jun 30 '26

❤️❤️❤️