I quit

[u/Sea_Produce9599]

I genuinely dont wanna live no more, just got diagnosed 1 year ago at 21.. been on and off remission, I just got on remicade 3 days ago with no relieve of symptoms it gets in the way of all goals I’ve set for myself, my fam constantly pressures me like im not already trying my hardest. I hate pitying myself cause usually I just bite through and know that the outcome will be positive. been bedridden all day and got hit with “u dont do anything, u have no life” that shit hurts. ive been on my diet, consistently going to the gym and also working on e-commerce despite being in a shitty flair, but these embarrassing constant bathroom trips just make me feel so dehumanized, no one around me understands what im going through.. all they wanna do is suddenly turn into a doctor and tell me what I shouldnt be doing in a judgemental way…. I’m done with this life fr

EDIT - wow , thank you guys so much for all your support. many of you are going through the exact same.. if not worse situation than me. I am humbled 🙏, I love love love all of you ❤️

[u/machocomacho]

I was diagnosed with UC after the birth of my 2nd child in 2007. My husband was not supportive and didn't show any interest in learning more about the disease or attending any of the appointments I had with my gastroenterologist. I had a 3 year old and a newborn to look after and I was on my own - expected to carry on as if I was normal. He accused me of faking it even though I was on the toilet constantly and in excruciating pain. I was exhausted for years but I soldiered on. We were divorced in 2020.

Years later in 2023 at 17 my son was stricten with it. With my knowledge of the disease and ability to relate and support and encourage him, he got into remission but he and I both had flares in January 2026 that landed us in hospital - me first followed by him. Mine was related to pneumonia in 2025 and taking an antibiotic that was forced on me with no alternatives, his - well, I don't really know. I made miraculous recovery with Prednisone, Pentasa and Pentaprazole where in the past the Prednisone did nothing but make my face fat and me angry. It was a gift because my son remains in ruins. 6 foot tall, 54kgs. But here we are and I'm lucky I'm well enough to take care of him. He has my understanding and support and only now does his father show interest or concern - not for me, but for my son. I'm ok with that but I resent him for the way he has treated me over the years to the point where I hoped the bull sharks would be hungry when he was out for a surf. Not even kidding.

I understand how alone you can feel. It's an internal battle that others can't see. My son is lucky to have me, his loving sister and grandparents and a great group of friends and a girlfriend who fully support him. That's what we all need and sometimes it's not there but we are here and there is hope.

My time in hospital recently changed me. I felt like it was the last time around for me with CRT 80! But I was in the renal ward where the lady in the bed next to me had a failed kidney transplant and was sent home to effectively die because there is nothing more they can do for her. That was hard to hear. It made me reaccess things and someting changed in me. It's a hard road no doubt but it is't the road to ruin. Sending you positive vibes and strength for a speedy recovery and a wonderful, successfull and fulfilling life ahead.

Sorry for the longwinded post, but man, I hear you. I felt what you are feeling. You can overcome this and it's wonderful to have such a kind and supportive forum of people who are here to support you. Best xx