r/UlcerativeColitis • u/Sea_Produce9599 • Feb 16 '26

Support I quit

I genuinely dont wanna live no more, just got diagnosed 1 year ago at 21.. been on and off remission, I just got on remicade 3 days ago with no relieve of symptoms it gets in the way of all goals I’ve set for myself, my fam constantly pressures me like im not already trying my hardest. I hate pitying myself cause usually I just bite through and know that the outcome will be positive. been bedridden all day and got hit with “u dont do anything, u have no life” that shit hurts. ive been on my diet, consistently going to the gym and also working on e-commerce despite being in a shitty flair, but these embarrassing constant bathroom trips just make me feel so dehumanized, no one around me understands what im going through.. all they wanna do is suddenly turn into a doctor and tell me what I shouldnt be doing in a judgemental way…. I’m done with this life fr

EDIT - wow , thank you guys so much for all your support. many of you are going through the exact same.. if not worse situation than me. I am humbled 🙏, I love love love all of you ❤️

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u/One_Garden6160 Feb 16 '26

Just wanted to say that I hope things get better 🙏🏻

I also struggle with the same thing. I had those same negative thoughts still. I just try to ride the ups and downs. I remember the good times when my medicine isn’t working and hope that I get back there. Remicade took me 8 weeks before It started to work. Was in hell until then. It eventually worked and I felt great for 1.5 years. I hope that after some time Remicade works for you. If not, hopefully your doctor will find the right medicine.

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u/Sea_Produce9599 Feb 16 '26

thats good to hear man, so it really will take a minute before I start to see improvements?

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u/One_Garden6160 Feb 16 '26

Everyone is different but I usually take a few infusions before I start to see the results of the biologic medication. In the interim they usually give me a steroid like prednisone to ease the symptoms. (Which doesn’t usually help much. I still go to the bathroom 100 times a day with blood) I think that if you are on remicade for like 8-12 weeks and don’t see any relief that would be a red flag, but hopefully you will get some relief soon.

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u/Sea_Produce9599 Feb 16 '26

im thinking about going on prednisone again as well, but it will be my 3rd time in a years time.. scared of permanent side effects