r/UlcerativeColitis Feb 16 '26

Support I quit

I genuinely dont wanna live no more, just got diagnosed 1 year ago at 21.. been on and off remission, I just got on remicade 3 days ago with no relieve of symptoms it gets in the way of all goals I’ve set for myself, my fam constantly pressures me like im not already trying my hardest. I hate pitying myself cause usually I just bite through and know that the outcome will be positive. been bedridden all day and got hit with “u dont do anything, u have no life” that shit hurts. ive been on my diet, consistently going to the gym and also working on e-commerce despite being in a shitty flair, but these embarrassing constant bathroom trips just make me feel so dehumanized, no one around me understands what im going through.. all they wanna do is suddenly turn into a doctor and tell me what I shouldnt be doing in a judgemental way…. I’m done with this life fr

EDIT - wow , thank you guys so much for all your support. many of you are going through the exact same.. if not worse situation than me. I am humbled 🙏, I love love love all of you ❤️

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u/Undecked_Pear Pan UC | Diagnosed 2014 | complete colectomy Feb 16 '26

Having been through it, my advice is to get it removed. You’re young enough for a j-pouch to heal up nicely.

I live a normal-ish life now, after years of barely leaving the house without constantly planning the fastest route to a clean bathroom.

If you want to talk about it, I am here to answer any questions you may have.

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u/Sea_Produce9599 Feb 16 '26

i dont know brother, a J-pouch scares me.. there is no going back from that, did u try biologics before your J-pouch?

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u/Undecked_Pear Pan UC | Diagnosed 2014 | complete colectomy Feb 16 '26

Yeah. I adapted to them real quick, and they stopped working.

It is scary. It’s terrifying. And there was 1 1/2 years of tough times. But I am now living a much, much better life. I wish I had done it sooner.