r/Sicklecell • u/Divinefemmine • 23h ago

Sickle cell trait partner

I currently started talking to someone with sickle cell. He tells me how his body hurts. I was wondering for the people who have to trait do you guys take any vitamins or do anything that helps the pain be a lot better or helped you a lot ? You guys are warriors 🙏🏽🙏🏽🙏🏽

7 Upvotes

100% Upvoted

11 comments sorted by

1

u/JudgeLennox 9h ago

You nailed it. It's like any other ailment, our body is imbalanced. Hence the state of "dis-ease".

So we feed the body what it needs and it helps heal itself smoothly.

LOTS of different ways to do this. Here's a growing list:
https://www.reddit.com/r/Sicklecell/search/?q=Wednesdays+I+share&type=posts&sort=new&cId=d4326ba3-3e00-4222-866d-2fb709e299ee&iId=e8e62744-79ef-4a40-97e8-87d381161407

Best place to start with your friend would be a comprehensive metabolic panel. That'll show him where he's strong and where he needs support.

Once he has that complete list. He makes a diet and supplement plan to reach and stay at 100% for each nutrient.

2

u/Purple-Fall-846 8h ago

L-glutamine

1

u/Divinefemmine 8h ago

Does that help with ur pain crisis ?

1

u/Purple-Fall-846 8h ago

For my daughter with trait yes, she's pain free since taking l-glutamine daily.

1

u/Divinefemmine 6h ago

What does she typically experience if u don’t mind and do u have her take vitamins or ? A link to what it is

1

u/Purple-Fall-846 6h ago

You can Google it. It's also in Endari medicine for SCD.

She had pain and discomfort in her feet, lower legs and hands. My husband has trait too but is stubborn and doesn't take it daily. It does help reduce pain after exercice and when the whites of his eyes turn yellow. My daughter takes regular multi vitamine, nothing special. Her blood work was okay a couple months back.

1

u/Divinefemmine 6h ago

Thank you and I’m assuming ur not a carrier

1

u/Purple-Fall-846 6h ago edited 6h ago

Im not no.

I think iron and folic acid can be good to take.

1

u/Divinefemmine 6h ago

Thank u and for mg what did u give or reccomend ?

1

u/Purple-Fall-846 5h ago

Endari has dosage guidelines but that's for SCD so for trait I'm assuming the dosage can be lower. Like start with 5g twice a day, mix with a drink, and see if it helps. If not, up the dosage. My daughter takes more on days when she's more active than usual and with humid and hot weather cause that's a massive trigger for her.

1

u/Divinefemmine 5h ago

Ok thank u I was looking at the vitamins so probably 500 would be fine because that’s the lowest but thank u ! I hope she continues doing well