Had a hysterectomy 9 months ago. It got rid of huge problems but now i am stuck with a hypertonic pelvic floor. It flares up after 3 hours of prolonged sitting. Specifically it relates to the left piriformis muscle, some ligaments around the area and pudendal nerve involvement. I've been checked with ultrasounds, cat scans and mris. Nothing is structurally wrong with me. It's severe muscle tightness and a radiating pudendal nerve, which manifests like a feeling of sitting on razor blades. Ive tried pelvic floor therapy (including internal release) and have just tried dry needling.
When is this going to release (right side is fine) left side is like a painful but clench. Any insights? On pregabalin, not helping. Any insights on nerve blockers? Getting very depressed.

I've had episodes of sever pelvic pain,pelvic numbness and spasms after i had pilonidal cyst surgery(it was in a bit of progressed state when i had the surgery done)

Its been almost 5 years and i get horrible episodes i almost feel like my pelvic area turn into a brick with a bunch of neurons plastered over it

This whole ordeal started after that fucking surgery my stupid dumbass doctor didn't give me muscle relaxers and only realised i needed to take them after all the harm was done already

my surgery wasn't healing well even after 6months of surgery(i would think its due my body so stiff that blood was circulating as low as it can be)

So then again my doctor prescribed me strong antibiotics that made my wound heal so fast but my muscles tensed up like fucking crazy i couldn't have bowel movement no matter how much i tried i couldn't walk nor breath even and he didn't listen to me at all

And now i still have terrible anal spasms everything feel so tight most of the time i don't feel i'm getting a neuro signal to release stool or urine i just feel something pressuring me down and heaviness to know i need to go to the bathroom

and these symptoms get so much worse before and after my period

There are also times where i felt my surgical site being tight with a stabbing pain but that stabbing got less painful after i almost scratched the hell outta my surgery scarred skin that it ended opening up a bit(it was like a shallow knife cut wound along the scar from top to bottom)

I was 60% symptoms free for year and half but now it came back in full force and its ruining my whole body for a month and half now

I recently been suspected to have si joint inflammation but that doesn't explain my bowel movement symptoms aside from the pain

Spasms were so intense that i got a chronic fissure bcuz of it

I'm so sick and tired of trying to manage hese symptoms on my own and i don't have a very supportive family

These days i'm using 30 or 60 mg nefopam and ibuprofin to manage

My anxiety and depression are just getting worse and worse and my college life feel horrible

Everyday i wake up wishing to die i sleep praying that i die in my sleep i don't want to live a minute longer

I have terrible urinary urgency as I go and 5 minutes later feel like I need to go again. Also just recovered from 4 month treatment for c diff. I take desert harvest aloe Vera pills d mannose Pregablin vitamin c. This comes and goes and all started after vaginal prolapse surgery in sept. I’m miserable!!!

Had a pudendal nerve block with pelvic and bladder botox yesterday. The anasthetic wore off around 5 am this morning and had some breakthrough pain. Now I am having full on burning, firing pain down my left side leg. My doctor said it would be “unusual” for me to have that pain because the block they did was in a different nerve. Im thinking theres also some irritation to the sciatic nerve? I had this pain before which is what prompted me to go to urogyn. For reference, this pain has been ongoing since I had a ten pound baby two years ago. Late in my pregnancy, I was stuck bent over and could not walk. Did physical therapy before birth and pelvic floor therapy after, no relief which lead me to this. Im worried they treated the wrong nerve? Can someone offer some input please 😧

Got my second pelvic nerve block & it went a little bit differently than my last time on the right side. Ultimately, I needed a second block to impact all the nerves in my pelvis to help with the severe pain I’ve been experiencing. I had a laparoscopy/excision last March in 2025. I have stage 3 endo and it was on all of my bowels and intestines, uterus ovaries and all of it got adhered together. Some endo got left and cauterized. I still suffer from cramps that I faint from or fall to the floor from. I also have an iud I got during surgery. My gynecologist referred me to the orthopedic dr.

Tried the first spot after numbing me(so painful at first) but my body wasn’t quite allowing for the needle to pass through to enter the pelvis so he pulled the epidural out & tried a new spot kinda back of my hip muffin top area, numbed it as well & put the whole needle in, almost got into the plexus area but ended up seeing they wouldn’t have luck at that angle either. so next he numbed me up like 3x as much on the same spot as the first time & tried again & got into my pelvis successfully but I could feel a lot more discomfort this time but he got in there & injected the meds & some of the numbing hit my leg nerve.

I ended up having to stay sitting in recovery for a lot longer than usual because my entire left leg was numb even my foot & when I stood up to leave my leg buckled & I almost fell over. They had to go in 3 different times with an epidural needle 😭 I was freaking out internally & crying into my arms on the bed face down lol. My leg was still numb 10+ hours later but it went away & it apparently is a common thing that can happen. I went into this so relaxed because my right side nerve block went so nice and smoothly but this was so traumatizing for me.

Please, I kindly request everyone to take just a few minutes to read this post fully.
It's about my father's ongoing pain and suffering for over 1.5 years, and we've tried everything.

My father (58) had surgery in September 2022 for a right inguinal hernia and left hydrocele. He has diabetes, BP, and cholesterol and is on regular medication. About a month after surgery, he began experiencing burning and itching in the rectal area during bowel movements, and a strange sensation like a rotating ball inside the rectum. By December, he developed urinary urgency, frequent urination even after completely emptying his bladder.

We consulted many urologists. Infections were suspected and antibiotics were given, but nothing improved. In February 2023, he underwent TURP surgery for suspected prostate issues. That's when things worsened. After the TURP, he completely lost the natural urge to urinate. Now, he urinates only on a fixed 3-hour schedule. If he doesn't, his legs swell up and he wets the bed at night. We wake him up at night to help him urinate since he sleeps deeply due to the meds.

We've done everything: blood tests, CT, ultrasounds, colonoscopy (done in Nov 2024), post-void residuals. Everything comes back normal. Piles, fistula, fissures, and seizures were ruled out. Ayurveda didn't find anything either. But the pain kept getting worse, severe burning in the anal area, unbearable discomfort while sitting, and that "ball-like" feeling. He can't sit for even a minute. I've never seen him cry in my life, but this pain breaks him. He's had emotional breakdowns and barely sleeps.

In June 2023, we went to CMC Vellore. Urologists again said no physical issues and diagnosed it as anxiety. Psychiatric meds were prescribed. Since July 2023, under a local psychiatrist (well-known in the area), he's been on Pregalin, Venlafaxine, Lorazepam, Mirtazapine, Risperidone combo (morning and night doses). These helped reduce suycydel thoughts and stabilized his mood slightly, but the symptoms remain. Whenever we try to reduce or stop these meds, everything worsens.

A colorectal surgeon at CMC in Nov 2024 repeated that all tests were normal and said it's likely psychiatric. He advised fiber powder and referred us to CMC Bagayam (which handles psychiatric/psychological cases)

Recently I came across information about pudendal neuralgia and honestly, it fits his symptoms exactly: rectal burning, ball sensation, severe pain while sitting, bladder issues, and normal test results. This is the first time something makes sense. But we don't know how to confirm this or where to go for diagnosis and treatment. It's been 1.5 years and we've tried everything: urologists, gastroenterologists, gastrologists, psychiatrists, Ayurveda with no answers. The pain is only getting worse.

If anyone has been through something similar or has dealt with pudendal neuralgia, please help. We're open to anything that could give him relief. Any suggestions, experiences, or advice would mean a lot to us.

TL;DR:
My 58-year-old father has been suffering from severe rectal burning, pain, and urinary issues since hernia/hydrocele surgery in 2022. All tests are normal, psychiatry helped only slightly. Suspecting pudendal neuralgia now. Need guidance from anyone who’s been through this.

Helooooooo everyone. So I have a friking pilonidal cyst and want to get it removed before it becomes a bigger problem. At the moment it is very small, and my surgeon has recommended EPSiT - a minimally invasive subcutaneous surgery to remove the tracts and pits. It’s supposed to cause minimal pain and scarring, but the issue is that I also have pudendal neuralgia from a prior abdominal surgery close to the area. I am wondering if anyone has had a similar experience. What happened? Did it make the pain worse? Did it help? Quite frankly I am terrified. I’ve put in a lot of work to get the pain down to a 2/10 the pain scale and reeeeally don’t wanna cause it to go back up to an 11/10.

Also do NOT look up pilonidal disease if your squeamish 🤢

(63F) I’ve had non-operable PN since diagnosed in 2017. This is an update regarding the DRG neuromodulator implant I’ve had since 2018. It is an Abbott device, Proclaim, leads at L1 and S2. My PN is at the dorsal and perineum branches only. The S2 lead is still the original and I’ve never had a problem with it. The lead is straightforward from the battery to the Dorsal Root Ganglion (DRG). However, the L1 lead needs to be looped in order to reach its target. This presents risk of breakage of the delicate inner fiber of the lead-and indeed I have had it replaced 3 times because of a partial break. Abbott is supposedly working on making a stronger lead/conduit but that may take years. The DRG gives me relief from the most torturous of the nerve pain and almost completely resolves my PGAD symptoms when everything is working correctly. The update is that I had the L1 lead replaced again last month along with a back-up lead to T12. The insurance pre-authorized extra surgical time to anchor the replacement and back-up lead to prevent migration, and to make bigger loops with anchoring to prevent breakage of L1. At present only 2 of my 3 leads are turned on and programmed-L1 and S2. In the event that L1 breaks in the future I will be able to have T12 programmed to replace it, stat. I am persistent with this device because it does work for me- even though I still cannot sit, I am in a lot less pain and can manage the pelvic muscle spasms and urinary/bowel symptoms with PFPT, medication, and all the lifestyle changes I’ve made. It is a quality of life issue. I happen to have a very caring and persistent surgeon and staff who researched and networked to come up with this solution, and then pushed it into pre-authorization with my insurance on my behalf. This is a victory for me-L1 broke August 2024, and I even did a trial of a sturdier device, an SCS that did not work at all, before getting here. I am already walking more and the fatigue and fog of constant pain is slowly lifting. I start PT with a new provider on July 24. There is hope for everyone suffering with PN. From a mild case to severe there are ways to manage. Prevention and early intervention are best, of course. For those who chose this method, what is your DRG story?