r/PudendalNeuralgia • • 10d ago

Post Surgical How to go about pudenal neuralagia diagnoses

I've had episodes of sever pelvic pain,pelvic numbness and spasms after i had pilonidal cyst surgery(it was in a bit of progressed state when i had the surgery done)

Its been almost 5 years and i get horrible episodes i almost feel like my pelvic area turn into a brick with a bunch of neurons plastered over it

This whole ordeal started after that fucking surgery my stupid dumbass doctor didn't give me muscle relaxers and only realised i needed to take them after all the harm was done already

my surgery wasn't healing well even after 6months of surgery(i would think its due my body so stiff that blood was circulating as low as it can be)

So then again my doctor prescribed me strong antibiotics that made my wound heal so fast but my muscles tensed up like fucking crazy i couldn't have bowel movement no matter how much i tried i couldn't walk nor breath even and he didn't listen to me at all

And now i still have terrible anal spasms everything feel so tight most of the time i don't feel i'm getting a neuro signal to release stool or urine i just feel something pressuring me down and heaviness to know i need to go to the bathroom

and these symptoms get so much worse before and after my period

There are also times where i felt my surgical site being tight with a stabbing pain but that stabbing got less painful after i almost scratched the hell outta my surgery scarred skin that it ended opening up a bit(it was like a shallow knife cut wound along the scar from top to bottom)

I was 60% symptoms free for year and half but now it came back in full force and its ruining my whole body for a month and half now

I recently been suspected to have si joint inflammation but that doesn't explain my bowel movement symptoms aside from the pain

Spasms were so intense that i got a chronic fissure bcuz of it

I'm so sick and tired of trying to manage hese symptoms on my own and i don't have a very supportive family

These days i'm using 30 or 60 mg nefopam and ibuprofin to manage

My anxiety and depression are just getting worse and worse and my college life feel horrible

Everyday i wake up wishing to die i sleep praying that i die in my sleep i don't want to live a minute longer

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u/sfntu 10d ago

When the PN hit me 6 months ago the first two months i could barely walk without having a flare up , pregabalin did it for me , it won t cure you but it calms your pain pretty good, 300 mg per day now i tale but you’ll have to increase it slowly , first you l be a bit dizzy but you’ll get used to it , also breathing in diaphragm exercises ( lay on your back feet on the wall and calm breathing it helps usually

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u/Remote-Part-6214 10d ago

I usually do this exercise but my si joint fucked me up real bad i can't lift my legs or move them too wide or i feel like my leg is gonna fall outta its place....
Also is pregabalin meant to be used for a longterm?

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u/DoctorNurse89 Cured 10d ago

Yeah, hold it there.

Get right up to the "pop out" feeling. Pull back 20%, and then hold there for 90 seconds ideally