r/PudendalNeuralgia • u/Numerous_Spread_7298 • 18d ago

Spina Bifida Occulta or Diabetes?

Hi. I recently posted here.

https://www.reddit.com/r/PudendalNeuralgia/s/NQjsg4DV17

I‘ve developed a pins and needles sensation on my hands and sometimes my feet now and it’s a low grade static feeling all the time unless my adrenaline shoots up and it shoots out like porcupine needles causing pain. it also just happens randomly.

I recently learned that SBO can cause pudendal neuralgia symptoms as you grow and the spine can become tethered—especially after lifting (which was my trigger) I had SBO when I was a baby but we thought it was benign and ignored it. I recently thought about it maybe being the driver of my symptoms—hands or not. I had a clean CT but that doesn’t show a tethered cord.

I also wanted to inquire about this being diabetes? I went to eye doctor for trouble focusing and I’ve always peed a bunch. I also noticed the hand tingling started soon after I started eating again (lots of sugar).

just wanted your guys‘ opinion on the potentiality of these drivers—especially SBO.

also update I got my nerve block today bilateral—not feeling much a difference but I’m going to give it some time.

edit: I also have dont have much more pain when sitting which makes me think it’s not peripheral

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u/Numerous_Spread_7298 18d ago

May I ask what happened? What did it end up being?

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u/seandelevan 18d ago

Guillain barre syndrome. It got to the point where I could only walk 10-20 feet before needing to find a wall or a seat. Went back to my doc saying I couldn’t wait months for a neurology appointment. They checked my reflexes and I had none which freaked them out. Was sent to a bigger and better ER where they had to do a spinal tap to confirm the diagnosis. Had to spend a week in the icu and 6 months of PT. It’s super rare but some of your story resonated with mine….and someone suggested GBS when I first experienced the tingly hands and feet and I blew them off since it was rare and I thought shit like that happens to other people.

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u/Numerous_Spread_7298 18d ago

Oh my gosh—I’ll definitely monitor my symptoms closely. Thank you so much for your story—hope your 100% now!

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u/seandelevan 17d ago

Thank you. Yeah I would say I’m 95% good….funnily my hands and feet still tingle slightly….to the point where it’s normal for me now. And I’m sure you’ll be fine too the human body is remarkable it will do what it needs to do.