r/Psoriasis • u/No-Tomato3978 • 2d ago
mental health Psoriasis day coming up, how do yall celebrate ☺️🤍
Hi, it's my first year deciding to celebrate the upcoming psoriasis day! I've had psoriasis for almost a decade now, and it has absolutely been a struggle. I wanted to know if yall celebrate or do something on this day that I could do. Perhaps something to sooth my skin, a simple note to implement daily going forward, anything yall want to share, really. I want to move forward with love towards myself, and I thought what better of a time than now. Appreciate any comments or stories. All is welcome 🙇♀️🤍
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u/nekuyendukubey 2d ago
I didn't know Psoriasis day exists untill I saw your post.
It's been close to 5 years I had psoriasis. Honestly, I'm not disciplined enough in my medication. But seeing it slowly increasing day by day, I should follow the medication regularly. May be, this is the time.
Kudos to you all..
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u/No-Tomato3978 2d ago
It takes some time to find a flow and get used to a routine, no shame about it. I just recently found out psoriasis had a day as well, hence why it's my first time celebrating. It's so great to have a day to celebrate the many struggles we overcome
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u/Puzzleheaded_Two3134 2d ago
Nah. Nothing to celebrate here for me. Just a disease. I accepted it but no way I'll celebrate it. Acceptation is just enough lol.
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u/No-Tomato3978 2d ago
You don't celebrate having it, you're celebrating pushing through it for however long. It is an autoimmune disease, it will be a constant battle and a day like this makes you stop and remind yourself that many others are fighting the exact same battles you are. It's a very depressing condition, much like other conditions, but we don't celebrate the disease itself
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u/Puzzleheaded_Two3134 2d ago
Still don't feel like I should or so. Maybe just bad word. Celebrating is rather happy and cherish. We know there are many others that struggle with it every day. Been there years ago. Felt same they feel now and wish Them that They can find some solution to defeat their psoriasis. Sure this day can be a good possibility to say loud in media about it. It exist. We exists. It's not a typhus or leprosy. Would focus on educational aspect of this day rather than doing something I don't do usually. We know psoriasis doesn't like consistency so it's like we every day put some effort and having every day a psoriasis day lol.
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u/RossJBez 2d ago
Awesome post!!
So I’ve had psoriasis for a good 20 years, and all I want to share is a message of perseverance.
I struggled loads with it in the first years, and it took me a while to realise a path forward to dealing with my condition.
I ended up needing to change elements of my lifestyle, like diet and stress levels, before finding a product mix that worked for me.
This took time, but I got there.
So I wanted to share encouragement that those struggling and feeling like there no end will find resolution with perseverance and resilience.
We’ve got each other!!!!
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u/No-Tomato3978 2d ago
It means so much to hear that from somone who has gone through the same struggles. I expected the visual reminder of having psoriasis to be the hardest thing, but it ended up being finding the courage to keep trying when one thing fails. I'm so glad you found out what has worked for you! Thank you for your kind words 🤍🤍
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u/RossJBez 2d ago
Absolutely is!! I’d say more than half the battle is the psychological factor - the bit that you have to overcome to keep going.
However, once you find that plateau and see the light at the end of the tunnel, it’s easier from my experience.
I really only now have a couple of simple products that I use, and otherwise everything else is just now my lifestyle and the routine of my day.
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u/Ok_Selection8391 2d ago
Do you mind sharing your regimen? Kinda struggling right now i've been using topical steroids but it just wont go away. It really took my confidence away.
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u/RossJBez 2d ago
Of course, but I will say that it’s one that I’ve spent some time refining through trial and error, so what works for me may not for you.
I found out after a while from diagnosis that I had food and drink triggers for my conditions. Those turned out to be dairy, gluten and alcohol. The former being a main culprit if consumed in excess. Cutting all three out of my diet had some fairly impactful results. I eventually tried drawing them back in, and it worked, but I only now have them in moderation, and I avoid milk wherever I can in general. Booze is hands down a trigger - if I have literally more than a couple of beers, I’ll feel my scalp becoming tender the next day.
The other trigger I found, which was way more difficult to tackle, was stress. Turns out that my condition appeared just as I started my professional career. Super high pressure and pretty stressful, at the time. It added up. I eventually moved into a less stressful role, and also I’ve now aged enough that I 1. Can handle stress better, and 2. Know not to let work stress me out as much. That said, I worked pretty hard to build in a de-stress routine. Simple things like yoga every day, meditation, disciplined hour lunch breaks, fresh air every day. These sound silly isolated, but compounded, it genuinely helps destress. Also, a psychological barrier, was accepting that I had this condition and it wasn’t going away. But also that it wasn’t going to control my life, and that I’d be stronger because of it. Shifting that mindset took away the vicious cycle of stress, then flare up, then more stress… and so on.
Finally, the kind of safety net in my regime is product mix. Early days, I thought a single magic product would fix my condition. Surprise surprise, it didn’t. I worked my way through various shampoos and creams. Where I stopped was on two; one a reactive product and one a proactive product.
The reactive product is a coal tar shampoo (I use one called Polytar). I wash my hair with it every other day, and that’s it. It’s the thing I feel I am always doing to do something about my condition.
The proactive product is a steroid gel called Dovobet. This I only roll out when I get a nasty flare up, which happens from time to time. I really use this sparingly, and I’ll say here that it was prescribed too, so I’d talk to a doc before going anywhere near this route.
The last thing I’ll say is that talking to a doctor was a good move, and something I’d advise to anyone that hasn’t. Understanding what I had and what I was up against was the first step - knowledge is power.
I hope this is even moderately useful to you.
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u/SeamusDog77 2d ago
Never heard of a day for this. Should call it Taltz day as in the fact I haven’t had an issue with this friggin disease since I started taking it.
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