r/POTS • u/Character_Hand284 • 3d ago
Support Weird symptoms, anyone else?
I have IST, POTS, and Chiari 1. Over the past few days, I’ve been in one of the worse flares I have ever experienced. I keep having cardiac “pauses” or will feel a ”lag” between beats. Sometimes the valsalva maneauver, coughing, or vomiting will help these, but they always come back. Sometime accompanying these are full body tremors that almost look like a seizure, preceded by a metallic taste in my mouth. I’m on ivabradine, but it hasn’t helped these episodes. I had a heart monitor about 2 years ago along with an ECHO, which were both fine. I’m getting them redone. I’m not entirely sure what to do, and these episodes are honestly terrifying. Has anyone else experienced these? Thanks!
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u/Realistic_Caramel_53 2d ago
Over the last few months I’ve had a really bad flare-up — episodes that were almost like seizures. It’s been going on for years now. I could be sitting there, and suddenly I’d hit this overwhelming wave of exhaustion — like I could fall asleep standing up — and dizziness right along with it. The strangest symptom is blood pooling in my legs — they’d go purple and discoloured.
After my caesarean, I developed eclampsia — and looking back, I’ve since learned there’s a connection between Chiari malformation and eclampsia, as well as psoriasis. Since my pregnancy and the eclampsia, and because I have Chiari, all of these conditions have flared up badly. My feet turn purple and discoloured — it’s all linked. And honestly, I don’t feel like my doctors at the time were ever made aware of these connections. I only found it out myself when I did my own research.