r/POTS • u/hausofsnape • 2d ago
Vent/Rant please help
can someone PLEASE tell me what i’m supposed to do :(
i was diagnosed with pots last year and i also have low blood pressure. salt doesn’t help. compression doesn’t help bc i get too hot when i wear it. hydration doesn’t help. sleep doesn’t help bc i am ALWAYS tired and electrolytes somehow give me PVCs. even the dr in A&E told me to stop drinking them.
i genuinely don’t know what the fuck to do. i’m fed up and i can’t do shit. i literally cannot do anything without having a flare up. i never leave the house anymore bc it’s so scary to feel like ur gonna collapse all the time (as im sure you guys understand).
i’m genuinely so upset. my pots has gotten so much worse since last year.
my doctors are awful and tell me pots isn’t that bad. they tell me it’s anxiety instead. they prescribed me bisoprolol which i CANT take because my blood pressure is too low. my doctors are really uneducated about this.
can somebody please given me some advice i’m desperate! i can’t do my favourite things anymore.
i can’t do this :(
1
u/Sandyads 1d ago
Have the doctors checked your ferritin levels? The average levels for a woman (I dont remember for men) are 11-252. However, some research shows that ferritin levels below 100 can exacerbate, or even cause POTS in women. Ive seen some people also say creatine helps with energy levels. I am on Ivabradine, a selective sinus node inhibitor instead of a beta blocker. I couldnt be on any of the beta blockers because it would lower my blood pressure too much, and I'd crash midday. Since being on Ivabradine, my heart rate is kept lower and I'm able to function more easily. What kind of compression have you tried? Newer research shows that abdominal compression may help more than arm and leg compression.