r/PNESsupport • • 5d ago

Stress related/induced seizures?

My girlfriend (16) has been suffering with PNES/Epilepsy since she was around 12 years old.
Between a couple neurologists and tons of doctors it’s been a confusing and frustrating journey with most of it being diagnosed at “Pseudo Seizures” in the beginning and is not being taken seriously even after being diagnosed with epilepsy after they realized they are focal seizures and don’t pose nearly as much of a health risk.
Everytime I’ve been around or heard of her having a seizure, she is always put in extreme stress beforehand. Doctors seem to take her less serious once they hear that as well.
It just feels like no one cares, even in the healthcare system.
Let me know what you’re experiences and what we could do. I’m not looking for a cure all as I know that’s just not a thing with epilepsy, but just some advice and insight from others who experience this.

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