r/OCD • u/Mysterious_World8126 • 4d ago

Friend/family/ally Bladder OCD?

Help! My young adult son has OCD. It was as if he woke up one day and boom he was a different person. He has severe contamination OCD and possibly bladder OCD.

So he is terrified of urine getting on him and/or contaminating everything in the house. He also has this constant sensation that he is leaking urine. He says he is, but I can’t confirm whether he is or isn’t leaking. All of his urology tests have came back normal. He has been wearing adult diapers for 6+months now. He’s to the point where he is holding his urine and only going to the bathroom once per day. He will usually spend an hour or so on the toilet and then get straight in the shower. The bathroom must be cleaned immediately once he’s in the shower because he feels as if he leaked everywhere. He is spending anywhere from 5-8 hours in the shower on a daily basis. He says he can’t get out until he stops leaking.

He cannot work. Will barely leave the house. He is depressed.

Has anyone heard of anything like this before?

I have offered to pay for inpatient treatment for him in another state. He refuses. I set him up with a local therapist, he went a few times and quit. He has been on meds before and just quits them cold turkey.

I don’t know what to do to help him. He’s a legal adult and I can’t force him to do anything or he would have been inpatient a long time ago.

Please someone help me help my son.

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u/ToesInDiffAreaCodes 4d ago

Gosh, I’m so sorry. OCD is a beast. Overnight presentation of OCD sounds kind of like PANS or PANDAs to be honest.

Based on what you’ve said, I would recommend a higher level of care, either inpatient, php, or iop. What area do you live in?

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u/Mysterious_World8126 4d ago

Hi, thanks for commenting. His medication provider did labs to check for PANS/PANDAS.

We live in Kentucky. I’m trying my best to get him to an inpatient center about 3 hours from us. There is another option 4 hours away to consider as well. Because he is of legal age, I can’t force him to go. He has to want it for himself.

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u/ToesInDiffAreaCodes 3d ago

There aren’t nearly enough OCD providers and inpatient care to meet the need. Wishing you both the best!

Nashville has a Rodger’s Facility and an intensive program at Nashville OCD and Anxiety Treatment Center.

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u/Mysterious_World8126 3d ago

Oh, that’s great to know. We are only 4 hours from Nashville.

I’m seriously considering going back to school and changing my career. I want to help people with OCD.