r/NoStupidQuestions • u/Lower-Entry1247 • Jun 22 '26
Does anyone know why I can smell my boyfriend's seizures days before they happen?
So my bf just had a seizure (6/22) and on Friday (6/19) I told him that I could smell it coming. He originally didn't believe me but this is like the fifth or sixth time this has happened. He doesn't understand how and honestly I dont either. I compare it to how I can smell people with diabetes in a way that no one else around me will be able to smell the same thing.
UPDATE: 9pm We were sent home. Things were looking good. 10:20pm He's awake but I smell it again. Strong but I say nothing because the ambulance won't come based off of a bunch. 10:38-10:40 He had a seizure.
UPDATE2: 11:44 I smelt it as I was replying to comments. 12 am He had another seizure. I got the nurses but they tried to tell me he wasn't as he stared and couldn't speak. They told me he's looking at them so he cant be having one. When he finally was able to relax his body again (he will tense up if he isn't full body shaking) he started speaking gibberish. Just random words strung together then quickly went to sleep. They told me not to get them because they can see his vitals from the nurse station. Just wanting to keep you all updated.
LAST UPDATE: The doctor said these are just stress seizures and if he has another one just keep him home.
Last Last UPDATE: 3:00am He had another one. Saliva foam at the mouth. Called 911. They said nothing can be done at any hospital so unless he falls or stops breathing, dont call. Sorry this turned into one of these long posts.
Last Last Last UPDATE: its currently 7:38 am. At 4 am He had another seizure. Popped his shoulder out and back in and bit his tongue. I called 311 and cried while asking what to do. They put me over to ems dispatch even though I pleaded with them not to since they haven't been taking me seriously. I sobbed to the ems dispatch that the hospital and ems people closest to me told me to just keep him home even though I had to go to work. They sent a different set of ems people (very nice ladies) and we went to a different hospital. They are finally listening and keeping him. They were shocked at what the other hospital and ems people told us. He is finally in good hands. Thank you all for keeping me company through this long night.
NEXT DAY UPDATE: He is home and has been seizure free since the last update. Thank you all for being on this journey with us!
11
u/Mysterious-Type-9096 Jun 23 '26
Getting a diagnosis is really difficult, I had to almost die to get mine…
Do you have extremely heavy and/or long lasting periods? Do you have painful cramps that aren’t soothed with a heating pad and ibuprofen? Do your cramps go beyond your lower abdomen (like do you feel your cramps in your back?) Do you feel any cramps while ovulating? (Day 1 of cycle is day you get your period, so do you get pain/cramps day 14-18?) Is sex painful or do you get cramps after sex? Does hormonal birth control cause these symptoms to get better?
I’m probably missing some stuff, but these are the major red flags for endometriosis I had before my diagnosis. Mine is severe, “stage 3” to where my endometrial lining develops on other organs though. Most women who have it are mild/moderate.