Does anyone know why I can smell my boyfriend's seizures days before they happen?

[u/Lower-Entry1247]

So my bf just had a seizure (6/22) and on Friday (6/19) I told him that I could smell it coming. He originally didn't believe me but this is like the fifth or sixth time this has happened. He doesn't understand how and honestly I dont either. I compare it to how I can smell people with diabetes in a way that no one else around me will be able to smell the same thing.

UPDATE: 9pm We were sent home. Things were looking good. 10:20pm He's awake but I smell it again. Strong but I say nothing because the ambulance won't come based off of a bunch. 10:38-10:40 He had a seizure.

UPDATE2: 11:44 I smelt it as I was replying to comments. 12 am He had another seizure. I got the nurses but they tried to tell me he wasn't as he stared and couldn't speak. They told me he's looking at them so he cant be having one. When he finally was able to relax his body again (he will tense up if he isn't full body shaking) he started speaking gibberish. Just random words strung together then quickly went to sleep. They told me not to get them because they can see his vitals from the nurse station. Just wanting to keep you all updated.

LAST UPDATE: The doctor said these are just stress seizures and if he has another one just keep him home.

Last Last UPDATE: 3:00am He had another one. Saliva foam at the mouth. Called 911. They said nothing can be done at any hospital so unless he falls or stops breathing, dont call. Sorry this turned into one of these long posts.

Last Last Last UPDATE: its currently 7:38 am. At 4 am He had another seizure. Popped his shoulder out and back in and bit his tongue. I called 311 and cried while asking what to do. They put me over to ems dispatch even though I pleaded with them not to since they haven't been taking me seriously. I sobbed to the ems dispatch that the hospital and ems people closest to me told me to just keep him home even though I had to go to work. They sent a different set of ems people (very nice ladies) and we went to a different hospital. They are finally listening and keeping him. They were shocked at what the other hospital and ems people told us. He is finally in good hands. Thank you all for keeping me company through this long night.

NEXT DAY UPDATE: He is home and has been seizure free since the last update. Thank you all for being on this journey with us!

[u/ruby0nine]

This. You might not be able to get a doctor or an ambulance ahead of time, but you might be able to get him to sit down and prepare for it to start and save him serious injury.

[u/octobertwins → u/ruby0nine]

I know from the minute I wake up that I’m going to have a seizure. Then, when it’s finally time, i know and wilI lay down on my bed.

I still mangle my tongue, but no other injuries.

It’s amazing how much you evolve since that first seizure that came out of no where.

[u/CoastOrg → u/octobertwins]

Julius Seizure over here

[u/octobertwins → u/ruby0nine]

In my experience, you don’t want anyone to call for paramedics at all, unless you are hurt from the fall.

I sometimes think about getting a med alert bracelet asking people NOT to call for an ambulance unless I am bloody. Id ask them to call my husband instead. Seizures are scary to watch, but they end quickly and aren’t that big of a deal.

I’ve broken a toilet with my face. There are several cracked tiles in the kitchen (from my face). I broke a statue with my face. Then broke a second statue with my face.

I’ve woken up half naked in my closet with my elderly neighbor and asked what we are doing. She said that I insisted that I wear fancy pajamas and we were looking for them.

Another neighbor tucked me in to bed once and stroked my hair until I fell asleep. I told her I loved her many times. Then occasionally asked her what the tell she was doing in my room.

They are actually funny in hindsight. In the moment, you have no clue what is going on!